ENDO Messages for June, 2007: Re: Endo in the brain?

Re: Endo in the brain?

From: anonymous (anonymous@obgyn.net)
Sat Jun 2 19:57:04 2007

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Reply: M: "Re: Endo in the brain? April"

I have not, but I have heard that it is possible. I have not spoken to anyone who has experienced it, however I am talking to my doctor on Tuesday-post op-lap confirming endo for the 3rd time. I have numerouse cysts on the scalp and in other areas of my body, so I am going to ask if there is some type of scan to see if there are cysts elsewhere as well. I would like to have all of them removed and tested to see if they indeed are endo as well. He will probably think I am crazy, but one of the lumps on the top of my head has quadrupled in size over the last 6 months. I NEVER had a cyst before my period began when I was 11, and I think they started about the same time my endo started causing the pain and bleeding that it did. If by some reason it is I will certainly post on this forum to let everyone know. This way any woman living with endo will take every small lump seriously, and hopefully the doctors as well. I have been told that the only way endo has been diagnosed in areas of the body not seen by laparoscope is if there is another procedure being done in those areas for example removing part of the lung or diaphram-they find endo. I am almost positive that I have endo either on the base of the lung or the top of my kidney-I have had constant debilitating flank pain-I am going to demand an ultrasound of that area to rule out stones, I just had a lap and a cystoscopy and IC has been ruled out as well as endo on the urinary tract (yet I have had 10 UTI's in the last year and a half). Endo is such an awful disease in part because it is not well understood-by sufferers and doctors alike. Did you post your question because you suspect something as well? Sometimes if there is someone else going through it with you-you can find some comfort in knowing you are not alone. I wish you well.

April

At Fri, 1 Jun 2007, M wrote: >
>I was wondering if anyone here has endo in their brain?

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