ENDO Messages for June, 2007: Re: Should I be scared?

Re: Should I be scared?

From: Allyson (anonymous@obgyn.net)
Fri Jun 1 23:37:16 2007

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Jenn, There while there is plenty of reasons to be scared the surgery itself is not that bad. My story is about the same as yours. I started around 11 myself and suffered horrible debilatating pain that sent me home from school and luckily my boss now is understanding and allows me time off when it is needed. I was diagnosed when I was 16 with endometriosis yet my doctor told me it was something I would just have to learn to live with and gave me pain medication. He failed to mention to me it is the number one cause of infertility and all the other complications that follow. I was OFFICALLY diagnosed by a new doctor (b/c of the lapro) about 3 months ago. I am in a fairly advanced stage and my doctor told me from his experience (nothing is a gurantee due to the fact so little is known) that from other patients he has seen it appeared I had a good 3 fertile years to get pregnant with maybe only minor complications. He had also discovered a huge cyst (64ccs of fluid) on my right ovary. Unfortunatly after my surgery I still have horrible pain that interupts my life. About the only true way to be sure you have endo is to have the lapro done. That way they can cut out all the transplanted tissue to keep it from building up. While my story is far from inspiring I talk to many woman who have had wonderful results from the surgery. I say get it just to know for sure, b/c if it is not you can try to figure out what is going on. The surgery is a little painful afterwards simply b/c the cuts are in your abdomen and through muscle (I never realized how much I move my torso till after that surgery!!) Good luck to you. It is a horrible disease but we must all stand together to try to discover a cure to keep our daughters from suffering. Stay strong Jenn.

At Fri, 1 Jun 2007, Jenn wrote: >
>Ever since I started my period when I was 11, I've always had severe
>cramps during my period. So intense that I would miss school and when I
>got older missed work. Since I was 15 I've been on 5 different birth
>controls, plus two different pain meds, all resulting in the same
>thing.... NOTHING! None of them have alleviated the pain and
>discomfort. More recently I've been experiencing pain well before I
>start my period, pain during intercourse, terrible "gassiness" (in the
>first few days of my cycle) and during an ultrasound in November they
>found a cyst on my right olvary. After dealing with this for the last
>12 years and getting no answers from the doctors, I've just decided
>today to do some research on endometriosis. Just by reading the
>symptoms, I'm almost convinced that this is what I have. I've scheduled
>an appointment with my gynocologist for next week. Should I be scared
>or concerned about a laparoscapy? Should I be looking for alternatives?
>Or should I end this once and for all and finally figure out what is
>going on? Is a laparoscapy really that big of a deal? Anyone that has
>gone through this and could give me some advise or insite to this would
>be greatly appreciated!

--
Allyson Reynolds

Next message: Stephanie: "Hello....HELP!!"
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