Re: FRUSTRATED...ANYONE ELSE???????
From: D (anonymous@obgyn.net)
Thu May 31 21:38:37 2007
Yes, I think Candace has it right, basically most obgyns don't
understand endo, therefore they don't want to deal with it. They know
they don't know how to remove it properly, and while I think it's
shamefully lazy of them not to learn how, I also prefer that if a doctor
doesn't have the skills, they be upfront about it. There are a lot of
obgyns out there who are oh-so-happy to take your money for burning the
tops off a few lesions and leaving you in continuing pain - I reserve
most of my scorn for that sort!
I would research this "specialist" she is sending you to and make sure
they are skilled at thoroughly excising endo - if the obgyn doesn't know
endo, they may not either. For the pain, I would try talking to the
obgyn again and if she still won't help you, ask her for a referral to
pain management. If she won't give you a referral, try your PCP. (Of
course if you can, refer yourself!)
There were several threads earlier today regarding hysterectomies (NOT a
cure!), specialists, and pain management, so I also recommend reading
those, and if you read further back in the forum I'm sure you'll find
more women in situations similar to your own - and hopefully good ideas
about what helped them that can also help you! Finding the right doctors
is REALLY important...
At Thu, 31 May 2007, Candace wrote:
>
>I think that a lot of OB/GYNs don't want to deal with this disease
>because they don't know a lot about it. They also know that it's
>incurable and that it's very hard to manage because everybody has
>different symptoms. I do hope that you can find the right doctor for
>you. I also hope that in time your pain will become more managed.
>
>At Thu, 31 May 2007, Carie wrote:
>>
>>Ok..I went to eh gyno yesterday and told her everything I was going
>>through..including 2 trips to the ER over the weekend, pain shooting
>>down my legs, and when I stand up for longer than a few minutes, it feels
>>like everything down there wants to fall out (Anyone else experience
>>that?????)Anyway...she put me on birth control. First of all, it gives
>>me horrendous headaches (and she knows that) she didn't give me an exam
>>or anything. I was diagnosed 7 years ago by a different doctor and
>>she knows my history(pills, laproscopy, Lupron Depot shots) anyway, it
>>feels like she wants to start at the beginning again, and I can't do
>>that...it's already been too long. I went to another doctor today and
>>she put me on an anti-inflammatory and scheduled me with a specialist. I
>>can't get in there for another month. I guess I have to deal with the
>>pain until then. Why do doctors..gynecologists especially...not seem to
>>want ot deal with this disease at all??? It is so frustrating when you
>>are in pain to be sent to one doctor after another because they are so
>>ignorant of the disease and don't know how to manage the pain until it
>>becomes so bad that you end up in the ER with a strange doctor who only
>>gives you pain meds to get you through until you can see the doctor when
>>they get in to the office. The cycle is never ending...anyone else been
>>there????????????????????????
>>
>>--
>>I was diagnosed about 7 years ago...had the laparoscopy and hormone shots and
>>a lot of pain for about 2 years...I stopped having the pain for a little while
>>(about 5 years), but it is starting up again. I had 3 miscarriages and 1 tubal
>> pregnancy since 1998, and my most recent miscarriage was in February. Since
>>February, my periods have been HORRIBLE. I have seen 3 doctors to determine
>>what the heck is wrong and all they want to say is the endometriosis is starting
>> back up again. The doctor I saw most recently said to me that there is no way
>> I could be in as much pain as I say I am. I am fed up. I just spent my entire
>>Memorial Day weekend in the emergeny room ( 2 times in 2 days) and I have to go
>>back to that same doctor tomorrow. I am fed up. I desperately want to have
>>another child, but the slim chance of me ever getting pregnant again is starting
>>to not be as important as getting rid of the pain. Seriously considering
>>a hysterectomy and i am only 29. Any advice from someone who's been there?????
>>HELP PLEASE
>>
>--
>Candace
>
>Wishing for pain free days for all!
>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
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