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Re: FRUSTRATED...ANYONE ELSE???????

From: Candace (anonymous@obgyn.net)
Thu May 31 20:27:05 2007


I think that a lot of OB/GYNs don't want to deal with this disease because they don't know a lot about it. They also know that it's incurable and that it's very hard to manage because everybody has different symptoms. I do hope that you can find the right doctor for you. I also hope that in time your pain will become more managed.

At Thu, 31 May 2007, Carie wrote: >
>Ok..I went to eh gyno yesterday and told her everything I was going
>through..including 2 trips to the ER over the weekend, pain shooting
>down my legs, and when I stand up for longer than a few minutes, it feels
>like everything down there wants to fall out (Anyone else experience
>that?????)Anyway...she put me on birth control. First of all, it gives
>me horrendous headaches (and she knows that) she didn't give me an exam
>or anything. I was diagnosed 7 years ago by a different doctor and
>she knows my history(pills, laproscopy, Lupron Depot shots) anyway, it
>feels like she wants to start at the beginning again, and I can't do
>that...it's already been too long. I went to another doctor today and
>she put me on an anti-inflammatory and scheduled me with a specialist. I
>can't get in there for another month. I guess I have to deal with the
>pain until then. Why do doctors..gynecologists especially...not seem to
>want ot deal with this disease at all??? It is so frustrating when you
>are in pain to be sent to one doctor after another because they are so
>ignorant of the disease and don't know how to manage the pain until it
>becomes so bad that you end up in the ER with a strange doctor who only
>gives you pain meds to get you through until you can see the doctor when
>they get in to the office. The cycle is never ending...anyone else been
>there????????????????????????
>
>--
>I was diagnosed about 7 years ago...had the laparoscopy and hormone shots and
>a lot of pain for about 2 years...I stopped having the pain for a little while
>(about 5 years), but it is starting up again. I had 3 miscarriages and 1 tubal
> pregnancy since 1998, and my most recent miscarriage was in February. Since
>February, my periods have been HORRIBLE. I have seen 3 doctors to determine
>what the heck is wrong and all they want to say is the endometriosis is starting
> back up again. The doctor I saw most recently said to me that there is no way
> I could be in as much pain as I say I am. I am fed up. I just spent my entire
>Memorial Day weekend in the emergeny room ( 2 times in 2 days) and I have to go
>back to that same doctor tomorrow. I am fed up. I desperately want to have
>another child, but the slim chance of me ever getting pregnant again is starting
>to not be as important as getting rid of the pain. Seriously considering
>a hysterectomy and i am only 29. Any advice from someone who's been there?????
>HELP PLEASE
>

--
Candace

Wishing for pain free days for all!






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