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Endomitriosis after complete hysterectomy with pain medicineFrom: Sara (anonymous@obgyn.net)Thu May 31 11:00:48 2007
I am 30 now, at 27, i had a full hysterectomy from severe endomitriosis. I haven completely given up on western medicine because i too have seen countless doctors and specialist, had 3 surgeries, MRI's, colonoscopys, ect. Fortunalty i have good insurance, but was still forced to file backreupcy a few years ago from bills stacking up. My medical chart is over 2 inches thick from the last 7 years. As a teenager i had many trips to the ER from ovarian cysts rupturing. As was forunate to have 2 children, one at age 18 and one at age 20. Into my twenties i got really sick and would cry all day from the intense pain. Not only pain but its a mental thing too, your body is wrong as it messes with your mind in many ways. You get weak, you cant help yourself and doctors just want to send you off for thier expensive testing they dont even bother to look twice at. I went through this for about 4 years before i found a OBGYN that wanted to do a diagnostic laproscopy. There is no cure for endomitriosis, it is a gene and the only way to 100% sure diagnose it is a diagnostic laproscopy. They went in through my belly button and put in a camera and found that my entire pelvic cavity was covered in endomitriosis. At that time they lazered off what they could and tied my tubes since i was done having kids. 3 months later i was once again in severe pain. This time they did another laproscopy and found that in 3 months the endomitriosis had retuned twice as bad. They did not want to do a hysterectomy on a 27 year old but when they got in there they found that one of my overies was completely covered in endomirtiosis and the other ovary was folded in half and stuck to the wall of the pelive cavity from scar tissue from endomitriosis. So they did a Laproscopy Assisted Vaginal Hysterectomy (LAVH). It laymens terms, they made 3 small incisions, one in my belly button again, and 2 on each of my sides. These incisions were for the camera, they sissors and thier grip. They cut the overies and pulled everything out vaginaly. Kinda like having a baby, but no baby. I call it getting my guts ripped out. So hear i am, almost 4 years later. I am on HRT (Hormone Replacement Therapy) to keep sane. I also see a pain management doctor once a month who gives me a shitload of pain pills and send me on my way. So why am i still in pain you ask? Because if you have a hysterectomy and they cannot save your overies and take them out, your young body will go into premature menopause not having estrogen and progestern, both released during the female cycle, and let me tell you, it sucks. No i dont have a period every month, but because of the hormones my body still cycles. Mentally a young women cannot handle menopause, its like this epic battle between your mental and physical state of mind and either way, i lose. At the begining of a womens cycle estrogen is released, estrogen feeds endomitriosis, at the end of the cycle progestern is released and progestern kills endomitriosis. So there is this intesely painfull war going on in your body all month long. I now also have scar tissue built up on my colon from the hysterectomy which cause additional pain and bowel problems, not fun. I wont go there. I was fortunate to have 2 beautiful daughters before my women parts were yanked from my body and discarded in some trach can. I almost felt for a while that my creative center as a women was taken from me. Now i just pretend its still there to stay sane, ha! No one understand, not women or man unless they have felt the pain of this aweful disease we share. I wish there was some way i could help you besides telling you my story, i had always wished someone told me about it before i agreed to have my female parts ripped out of my body, so that is why i am writing to you. I worry about the most now, my kids and me not being able to me and the person they deserve because of my pain and mental angwish over the pain medicine i have to take daily just to have a quality a life and to be able to function, get out of bed, have a job, clean my house and cook dinner. I hate that i now have to depend of narcotics and hormones to live a normal life and constantly worry about the damage it does to my body.The thing is, endomitriosis even after a complete hystercomy, like you pointed out can still grow anywhere in ther pelvic cavity, especilly increased by hormones. I feel like a 20 year old stuck in a 50 years olds body sometimes. The doctors around here treat me like a junkie, they know nothing about the disease, i only want to have a normal life and some quality of life without pain. Scared, in pain and dont know what to do now.
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