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Re: Is there anyone out there that has any input regarding my questions?
From: anonymous@obgyn.net
Thu May 31 02:23:11 2007
Hi!
I am 23 and have been diagnosed with Endometriosis since I was in the
8th grade and in high school they told me I was gonna have to have a
hysterectomy, but I told them no @ that option.
I would not recommend Lupron as well because I had the treatment around
02' and I did not like the side effects that I had. The thought of my
body going into early menopause is outrageous!!! I had major mood swings
which I had to have mood stabilizers for that too, Hot flashes and so
forth. So no I would not recommend it either.
My doctors have been wanting me to go back on it again now because my
endometriosis is getting worse as well to where I can't even get out of
bed any more, but I told them straight up no because I didn't want to
put my body through that again, plus have early osteoporosis @ only 23?
I don't think soooo!!! But I hope all goes well for you
-amanda
At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>
>Hi!
>Yes, I agree I think it's time I find someone new - I just don't agree
>with where things are heading with this doc. I was on Glucosamine
>(actually I took it along with my dog who was having joint pain at the
>time!) for a while and although it didn't help with the everyday pain I
>found it cut down on the flare ups.
>I am so curious to hear about all of these women that docs say hyst.
>cured their endo - seriously - if anyone knows of anyone, can you tell
>me their story? Where was the endo before the hyst.?
>Thanks Andrea!
>
>At Wed, 30 May 2007, andrea wrote:
>>
>>I'm sorry about all your pain. It sounds like your doctor doesn't
>>really care about you getting better. I'm against Lupron too! The side
>>effects sound awful and I've read a lot of horror stories about what
>>it's done to different people. You need to find a specialist and get
>>this taken care of for good. My specialist said women with endo have
>>weaker immune systems than most people and most have severe allergies,
>>and can also get fibromyalgia (random pain in joints) or early
>>osteoperosis. Have you ever tried Glucosamine Chondroitin? They have it
>>in all vitamin sections, it's for joints and bones. It helps. I'm also
>>on bioidentical progesterone (natural) and it helps a lot of my period
>>symtoms. I'm going to tell everyone about it on here soon, but it's a
>>loooong story! Alternative doctors are great, though. I think most
>>conventional doctors are just out to make money, along with the
>>pharmaceutical companies.
>>
>>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>>
>>>Hi!
>>>Thanks so much for your response...like I said I talk to my doc on
>>>Friday and would like as much input as possible. My hips ache all the
>>>time but that's the only joint where I get the pain. It's deep within
>>>and I, too, feel like I'm 100 when it gets really bad. My OB said that
>>>this is common with endo patients.
>>>The benefit proceeds will go to the Endo Association.
>>>Katie
>>>
>>>At Wed, 30 May 2007, anonymous wrote:
>>>>
>>>>I have not had a hyst, but know women who have and they have not helped.
>>>>I would do whatever I could do if I were you to see a specialist about
>>>>getting it excised. I have hip pain, also. In fact, a few years ago
>>>>the pain got so bad I went to my doctor about it. She put me through a
>>>>battery of tests and finally diagosed me with fibromyalgia. It hurts
>>>>all the time, but I have flare ups where I feel like a 100 year old
>>>>woman, and I can't even touch my hips, I wake up if I roll on my side. I
>>>>also have pain in my upper arms, lower back, shins, and feet, to name a
>>>>few other spots that flare up. The concert sounds like a great idea. If
>>>>I was anywhere near Canada, I'd go. What do you plan to do with the
>>>>proceeds?
>>>>
>>>>Good Luck!
>>>>
>>>>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>>>>
>>>>>Ok...
>>>>>>I've had endo since I was a teen (am 30 now), was diagnosed when I was
>>>>>>19, have had two laps. After my last one in Feb. 06, my OB told me the
>>>>>>endo was severe and wanted me to go on Lupron or have a hyst. I am
>>>>>>completely against Lupron (my personal opinion) and am unsure how a hyst
>>>>>>would help (I have endo elsewhere - not just reproductive). Anyways,
>>>>>>since the last lap, my endo has become much worse (it was really bad
>>>>>>before the lap and is now REALLY bad) and I went back to see my OB last
>>>>>>week. I asked her about excision and she said she could do it if I want
>>>>>>her to. She again pushed Lupron after having another lap or a hyst.
>>>>>>Here are my questions today...
>>>>>>1. How many of you are on the forum who have had a hyst? What results
>>>>>>did it give you?
>>>>>>2. How many of you experience excrutiating hip pain? I am an athletic
>>>>>>person (always have been) but don't do anything too pushy (walk, bike,
>>>>>>pilates etc.) In the last year my hip pain has increased dramatically
>>>>>>and am now at the point it hurts every step I take. I feel week and
>>>>>>feel like my hips could give out at any moment. My OB says she's seen
>>>>>>it many times and even knows of endo patients who use canes. This
>>>>>>scares me to death and am curious to know what others think about this.
>>>>>>How is endo doing this to my hips?
>>>>>>3. Are any of you patients of Dr. Lei in Toronto? Does he push drug
>>>>>>therapy? I've talked to my doc. about him (I think he's a he...) and
>>>>>>she said she would refer me to him if I wanted to.
>>>>>>Now...
>>>>>>On a lighter note - we have made some progress on a musical benenfit for
>>>>>>endo we are planning in Strathroy, Ontario on July 5th, 2008 at the
>>>>>>Gemini. A website is being worked on and when we've got more info on it
>>>>>>I will post again. We are really excited about the event and have tons
>>>>>>of support from our community. Our goal is to have between 1000 and
>>>>>>1500 people come out.
>>>>>>We will have a variety of bands throughout the day and into the evening
>>>>>>that will appeal to different people.
>>>>>>Back to my questions - any input would be much appreciated...have an
>>>>>>awesome night!
>>>>>>Katie
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