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Re: Is there anyone out there that has any input regarding my questions?
From: anonymous@obgyn.net
Wed May 30 17:39:09 2007
Hi!
Yes, I agree I think it's time I find someone new - I just don't agree
with where things are heading with this doc. I was on Glucosamine
(actually I took it along with my dog who was having joint pain at the
time!) for a while and although it didn't help with the everyday pain I
found it cut down on the flare ups.
I am so curious to hear about all of these women that docs say hyst.
cured their endo - seriously - if anyone knows of anyone, can you tell
me their story? Where was the endo before the hyst.?
Thanks Andrea!
At Wed, 30 May 2007, andrea wrote:
>
>I'm sorry about all your pain. It sounds like your doctor doesn't
>really care about you getting better. I'm against Lupron too! The side
>effects sound awful and I've read a lot of horror stories about what
>it's done to different people. You need to find a specialist and get
>this taken care of for good. My specialist said women with endo have
>weaker immune systems than most people and most have severe allergies,
>and can also get fibromyalgia (random pain in joints) or early
>osteoperosis. Have you ever tried Glucosamine Chondroitin? They have it
>in all vitamin sections, it's for joints and bones. It helps. I'm also
>on bioidentical progesterone (natural) and it helps a lot of my period
>symtoms. I'm going to tell everyone about it on here soon, but it's a
>loooong story! Alternative doctors are great, though. I think most
>conventional doctors are just out to make money, along with the
>pharmaceutical companies.
>
>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>
>>Hi!
>>Thanks so much for your response...like I said I talk to my doc on
>>Friday and would like as much input as possible. My hips ache all the
>>time but that's the only joint where I get the pain. It's deep within
>>and I, too, feel like I'm 100 when it gets really bad. My OB said that
>>this is common with endo patients.
>>The benefit proceeds will go to the Endo Association.
>>Katie
>>
>>At Wed, 30 May 2007, anonymous wrote:
>>>
>>>I have not had a hyst, but know women who have and they have not helped.
>>>I would do whatever I could do if I were you to see a specialist about
>>>getting it excised. I have hip pain, also. In fact, a few years ago
>>>the pain got so bad I went to my doctor about it. She put me through a
>>>battery of tests and finally diagosed me with fibromyalgia. It hurts
>>>all the time, but I have flare ups where I feel like a 100 year old
>>>woman, and I can't even touch my hips, I wake up if I roll on my side. I
>>>also have pain in my upper arms, lower back, shins, and feet, to name a
>>>few other spots that flare up. The concert sounds like a great idea. If
>>>I was anywhere near Canada, I'd go. What do you plan to do with the
>>>proceeds?
>>>
>>>Good Luck!
>>>
>>>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>>>
>>>>Ok...
>>>>>I've had endo since I was a teen (am 30 now), was diagnosed when I was
>>>>>19, have had two laps. After my last one in Feb. 06, my OB told me the
>>>>>endo was severe and wanted me to go on Lupron or have a hyst. I am
>>>>>completely against Lupron (my personal opinion) and am unsure how a hyst
>>>>>would help (I have endo elsewhere - not just reproductive). Anyways,
>>>>>since the last lap, my endo has become much worse (it was really bad
>>>>>before the lap and is now REALLY bad) and I went back to see my OB last
>>>>>week. I asked her about excision and she said she could do it if I want
>>>>>her to. She again pushed Lupron after having another lap or a hyst.
>>>>>Here are my questions today...
>>>>>1. How many of you are on the forum who have had a hyst? What results
>>>>>did it give you?
>>>>>2. How many of you experience excrutiating hip pain? I am an athletic
>>>>>person (always have been) but don't do anything too pushy (walk, bike,
>>>>>pilates etc.) In the last year my hip pain has increased dramatically
>>>>>and am now at the point it hurts every step I take. I feel week and
>>>>>feel like my hips could give out at any moment. My OB says she's seen
>>>>>it many times and even knows of endo patients who use canes. This
>>>>>scares me to death and am curious to know what others think about this.
>>>>>How is endo doing this to my hips?
>>>>>3. Are any of you patients of Dr. Lei in Toronto? Does he push drug
>>>>>therapy? I've talked to my doc. about him (I think he's a he...) and
>>>>>she said she would refer me to him if I wanted to.
>>>>>Now...
>>>>>On a lighter note - we have made some progress on a musical benenfit for
>>>>>endo we are planning in Strathroy, Ontario on July 5th, 2008 at the
>>>>>Gemini. A website is being worked on and when we've got more info on it
>>>>>I will post again. We are really excited about the event and have tons
>>>>>of support from our community. Our goal is to have between 1000 and
>>>>>1500 people come out.
>>>>>We will have a variety of bands throughout the day and into the evening
>>>>>that will appeal to different people.
>>>>>Back to my questions - any input would be much appreciated...have an
>>>>>awesome night!
>>>>>Katie
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