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Re: Is there anyone out there that has any input regarding my questions?
From: anonymous@obgyn.net
Wed May 30 17:17:45 2007
Just in case it is not endo, have you considered seeing an orthopedist
or having your PCP order an x-ray or MRI or physical therapy? Physial
therapy can even help with endo and chronic pain. just a thought.
At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>
>Hi!
>Thanks so much for your response...like I said I talk to my doc on
>Friday and would like as much input as possible. My hips ache all the
>time but that's the only joint where I get the pain. It's deep within
>and I, too, feel like I'm 100 when it gets really bad. My OB said that
>this is common with endo patients.
>The benefit proceeds will go to the Endo Association.
>Katie
>
>At Wed, 30 May 2007, anonymous wrote:
>>
>>I have not had a hyst, but know women who have and they have not helped.
>>I would do whatever I could do if I were you to see a specialist about
>>getting it excised. I have hip pain, also. In fact, a few years ago
>>the pain got so bad I went to my doctor about it. She put me through a
>>battery of tests and finally diagosed me with fibromyalgia. It hurts
>>all the time, but I have flare ups where I feel like a 100 year old
>>woman, and I can't even touch my hips, I wake up if I roll on my side. I
>>also have pain in my upper arms, lower back, shins, and feet, to name a
>>few other spots that flare up. The concert sounds like a great idea. If
>>I was anywhere near Canada, I'd go. What do you plan to do with the
>>proceeds?
>>
>>Good Luck!
>>
>>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>>
>>>Ok...
>>>>I've had endo since I was a teen (am 30 now), was diagnosed when I was
>>>>19, have had two laps. After my last one in Feb. 06, my OB told me the
>>>>endo was severe and wanted me to go on Lupron or have a hyst. I am
>>>>completely against Lupron (my personal opinion) and am unsure how a hyst
>>>>would help (I have endo elsewhere - not just reproductive). Anyways,
>>>>since the last lap, my endo has become much worse (it was really bad
>>>>before the lap and is now REALLY bad) and I went back to see my OB last
>>>>week. I asked her about excision and she said she could do it if I want
>>>>her to. She again pushed Lupron after having another lap or a hyst.
>>>>Here are my questions today...
>>>>1. How many of you are on the forum who have had a hyst? What results
>>>>did it give you?
>>>>2. How many of you experience excrutiating hip pain? I am an athletic
>>>>person (always have been) but don't do anything too pushy (walk, bike,
>>>>pilates etc.) In the last year my hip pain has increased dramatically
>>>>and am now at the point it hurts every step I take. I feel week and
>>>>feel like my hips could give out at any moment. My OB says she's seen
>>>>it many times and even knows of endo patients who use canes. This
>>>>scares me to death and am curious to know what others think about this.
>>>>How is endo doing this to my hips?
>>>>3. Are any of you patients of Dr. Lei in Toronto? Does he push drug
>>>>therapy? I've talked to my doc. about him (I think he's a he...) and
>>>>she said she would refer me to him if I wanted to.
>>>>Now...
>>>>On a lighter note - we have made some progress on a musical benenfit for
>>>>endo we are planning in Strathroy, Ontario on July 5th, 2008 at the
>>>>Gemini. A website is being worked on and when we've got more info on it
>>>>I will post again. We are really excited about the event and have tons
>>>>of support from our community. Our goal is to have between 1000 and
>>>>1500 people come out.
>>>>We will have a variety of bands throughout the day and into the evening
>>>>that will appeal to different people.
>>>>Back to my questions - any input would be much appreciated...have an
>>>>awesome night!
>>>>Katie
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