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Re: Weird question?? Pineapple juice makes my cramps WORSE....to Angie
From: Stephanie (anonymous@obgyn.net)
Wed May 30 15:25:08 2007
Hello Angie...Thanks for ur suggestion, im gng to ask my new gyn to do
that before doing anything else...Thanks Steph :)
At Wed, 30 May 2007, Angie wrote:
>
>Just so you know there is another test that isn't conclusive but also
>not so invasive. My doctor did it to me to see if there was a
>possability I had IC. It is called a potasium sensativity test. They
>can do it in the doctors office and it's not that bad. They put a tiny
>catheder into your bladder and insert some potasium solution. If it
>burns when it hits your bladder then there is a good chance you have IC.
>For me it just burned when I peed the potasium out so they said I was
>negative, and there was no point doing the distension thing. It is just
>a suggestion before being put under.
>
>At Wed, 30 May 2007, Stephanie wrote:
>>
>>Good Morning Sherri...(i live in California, so its about 8:25 am here)
>>Well i went to the doctors office yesterday morning...she just gave me
>>pyridium (sp?) to help numb, well i could of just bought those over the
>>counter, but i wanted to make sure i DIDNT have a UTI. She did give me
>>a questioneer about IC, im gng to fill it out and take it to the new gyn
>>im supposed to see on Friday. Im also keeping track of everything i
>>eat, so i can see if certain things trigger the pain. The doctor also
>>mentioned Elmiron, but the side effects are TOO scary, so that wont b an
>>option. So, far im not burning as much as yesterday so thats a BIG
>>help! Im starting to cramp a lil more bcuz of my period starting
>>tomorrow..ahhh! LOL Well take care and thanks for the help, it means a
>>lot in moments like these!! Steph :)
>>
>>At Wed, 30 May 2007, Sherri wrote:
>>>
>>>Stephanie,
>>>I am so glad that my info could be helpful to you!! I totally know what
>>>you're going through. I was diagnosed with IC in 2000, so it's been 7
>>>years now. The worst thing about it, besides the PAIN, is that it is
>>>also a chronic problem with no cure and very little ways to "manage" it.
>>>There's a med called Elmiron that's supposed to help with the pain and
>>>help repair the bladder lining, but one of it's major side effects is
>>>hair loss! I refused to try that med,because I knew some women that had,
>>>and they did have hair loss (ALOT for 1 ,A little for the others). Since
>>>I won't take it though, my urologists treats me like I'm not following
>>>his advise, so he gets really hateful about that, but, whatever, it's my
>>>body, my choice, right? Also, the women that I know of that took it said
>>>he did not relieve their pain,burning, frequency,etc. at all.
>>>Hopefully, your doctor will be willing to listen to you and try to help,
>>>or give a referral to urology if you need one. I hope it goes well for
>>>you, and please do let me know what happens!! We IC and endo sufferers
>>>need to stick together!! Good Luck!------Sherri
>>>
>>>At Tue, 29 May 2007, Stephanie wrote:
>>>>
>>>>Thank you so much Sherri!! Yes this sujbect has thrown me off, but its
>>>>been making more and more sense now. I have done even more reading, and
>>>>im gng in to see my doctor today. I cant even sit down here at work,
>>>>cause everything in my insides burns. It so uncomfortable. Last night
>>>>i just cried in the toilet because it hurt so much to go. I just want
>>>>some relief, and since im about to start my period on Thursday, my
>>>>crampings are getting worse. Im just full of problems and complaints!!
>>>>LOL...Thanks for your help, and sure will email you once i get out of my
>>>>doctors appt today to see what they told me. Thank You. How long have
>>>>u had IC for?
>>>>
>>>>At Tue, 29 May 2007, Sherri wrote:
>>>>>
>>>>>At Sun, 27 May 2007, Stephanie wrote:
>>>>>>Hello,Stephanie,
>>>>>
>>>>>What your describing does sound alot like it could be from IC
>>>>>(interstitial cystitis) Alot of endo patients also have IC, including
>>>>>myself. The test they do to diagnose IC is usually done by a urologist
>>>>>and it is called a cystoscopy/bladder distention. It's generally an
>>>>>outpatient surgery, but the do use general anesthia (spelling?) to put
>>>>>you to sleep while they do the procedure. They use some small
>>>>>instrument called a cystscope that they put in you, through your natural
>>>>>opening,so it can go into the bladder. It has a light or something on
>>>>>it that allows them to see the inside/lining of the bladder. Usually,
>>>>>if it's IC there are tiny pin-point hemorrages(spelling?) in the lining
>>>>>of the bladder. Supposedly, that's what causes some of the pain of the
>>>>>bladder. Basically, you are constantly bleeding (although tiny amounts)
>>>>>inside your bladder b/c of these tiny holes, this bleeding inflames the
>>>>>lining of your bladder and causes symptoms of pain,UTI symptoms like
>>>>>burning when you urinate,frequency of urination, feeling like your
>>>>>bladder is full, but when you try to "go", nothing or only a trickle
>>>>>comes out,etc. (I have it and I have the burning feeling
>>>>>constantly,whether I've just "gone" or not,the burning sensation is
>>>>>ever-present) The reason they tell IC patients not to drink or eat
>>>>>anything really acidic,is b/c it will cause the pain and burning
>>>>>sensation to increase(my doc calls them "flare-ups" when it happens to
>>>>>me)but, I tell him it can't be a flare-up if it never stops burning!
>>>>>But, yes orange,pineapple,cranberry,lemonade,any of those juices do
>>>>>cause me increased pain. Also, if I eat any citrus fruits I get really
>>>>>increased PAIN. The other part of the procedure called a bladder
>>>>>distention-while you are under-they fill your bladder to its maximum
>>>>>capacity to see how much fluid you can hold in there, b/c most IC
>>>>>patients,including myself can only hold very small amounts of urine in
>>>>>our bladder before we HAVE TO "GO"!! Also, the bladder distenion itself
>>>>>is sometimes helpful in reducing the amount of pain (for a while at
>>>>>least)so in this case the procedure they do to diagnose IC is also the
>>>>>same procedure they may try in the begining to treat IC. Hopefully,
>>>>>you'll read this and I want you to know you're not alone with this.
>>>>>Google or whichever server you use the words IC or interstitial cystitis
>>>>>and I'm sure you'll find a ton of info out there. You should probably
>>>>>get a urologist, if you don't have one already, and tell them that you
>>>>>think you may have IC,and maybe get the procedures done. I hope this is
>>>>>helpful to you!! When I first was diagnosed with IC I had never even
>>>>>heard of it,and I wish there would have been someone out there somwhere
>>>>>that I could have talked to. It is most definately not in your
>>>>>head,sweetie, it's in your bladder!! Good Luck! Let me know if you have
>>>>>some more questions or just wanna talk to someone who knows what you're
>>>>>going through. :)-Sherri
>>>>>
>>>>>>Hello, thanks for the reply, you mentioned to be checked out for
>>>>>>Intestitial Cystitis, what type of testing do i need to do for that. Ive
>>>>>>heard of this before but need more info. Thanks. Steph :)
>>>>>>
>>>>>>At Sat, 26 May 2007, anonymous wrote:
>>>>>>>
>>>>>>>Have you been checked out for Interstitial Cystitis? I'm asking because
>>>>>>>with IC acidic food and drink can be very painful when they hit the
>>>>>>>bladder. With a typical bladder infection cranberry juice is very
>>>>>>>helpful, but with IC it will cause great pain!
>>>>>>>
>>>>>>>Good luck!
>>>>>>>
>>>>>>>At Sat, 26 May 2007, Stephanie wrote:
>>>>>>>>
>>>>>>>>One more thing...i have a weird question...i have noticed that when i
>>>>>>>>drink orange juice i start to have painful cramping, and its even worse
>>>>>>>>when i drink pineapple juice! Its happened a few times now, so im not
>>>>>>>>sure if its just in my head or if its happened to others also. Steph :)
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