|
Re: Is there anyone out there that has any input regarding my questions?
From: andrea (anonymous@obgyn.net)
Wed May 30 14:34:01 2007
I'm sorry about all your pain. It sounds like your doctor doesn't
really care about you getting better. I'm against Lupron too! The side
effects sound awful and I've read a lot of horror stories about what
it's done to different people. You need to find a specialist and get
this taken care of for good. My specialist said women with endo have
weaker immune systems than most people and most have severe allergies,
and can also get fibromyalgia (random pain in joints) or early
osteoperosis. Have you ever tried Glucosamine Chondroitin? They have it
in all vitamin sections, it's for joints and bones. It helps. I'm also
on bioidentical progesterone (natural) and it helps a lot of my period
symtoms. I'm going to tell everyone about it on here soon, but it's a
loooong story! Alternative doctors are great, though. I think most
conventional doctors are just out to make money, along with the
pharmaceutical companies.
At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>
>Hi!
>Thanks so much for your response...like I said I talk to my doc on
>Friday and would like as much input as possible. My hips ache all the
>time but that's the only joint where I get the pain. It's deep within
>and I, too, feel like I'm 100 when it gets really bad. My OB said that
>this is common with endo patients.
>The benefit proceeds will go to the Endo Association.
>Katie
>
>At Wed, 30 May 2007, anonymous wrote:
>>
>>I have not had a hyst, but know women who have and they have not helped.
>>I would do whatever I could do if I were you to see a specialist about
>>getting it excised. I have hip pain, also. In fact, a few years ago
>>the pain got so bad I went to my doctor about it. She put me through a
>>battery of tests and finally diagosed me with fibromyalgia. It hurts
>>all the time, but I have flare ups where I feel like a 100 year old
>>woman, and I can't even touch my hips, I wake up if I roll on my side. I
>>also have pain in my upper arms, lower back, shins, and feet, to name a
>>few other spots that flare up. The concert sounds like a great idea. If
>>I was anywhere near Canada, I'd go. What do you plan to do with the
>>proceeds?
>>
>>Good Luck!
>>
>>At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>>>
>>>Ok...
>>>>I've had endo since I was a teen (am 30 now), was diagnosed when I was
>>>>19, have had two laps. After my last one in Feb. 06, my OB told me the
>>>>endo was severe and wanted me to go on Lupron or have a hyst. I am
>>>>completely against Lupron (my personal opinion) and am unsure how a hyst
>>>>would help (I have endo elsewhere - not just reproductive). Anyways,
>>>>since the last lap, my endo has become much worse (it was really bad
>>>>before the lap and is now REALLY bad) and I went back to see my OB last
>>>>week. I asked her about excision and she said she could do it if I want
>>>>her to. She again pushed Lupron after having another lap or a hyst.
>>>>Here are my questions today...
>>>>1. How many of you are on the forum who have had a hyst? What results
>>>>did it give you?
>>>>2. How many of you experience excrutiating hip pain? I am an athletic
>>>>person (always have been) but don't do anything too pushy (walk, bike,
>>>>pilates etc.) In the last year my hip pain has increased dramatically
>>>>and am now at the point it hurts every step I take. I feel week and
>>>>feel like my hips could give out at any moment. My OB says she's seen
>>>>it many times and even knows of endo patients who use canes. This
>>>>scares me to death and am curious to know what others think about this.
>>>>How is endo doing this to my hips?
>>>>3. Are any of you patients of Dr. Lei in Toronto? Does he push drug
>>>>therapy? I've talked to my doc. about him (I think he's a he...) and
>>>>she said she would refer me to him if I wanted to.
>>>>Now...
>>>>On a lighter note - we have made some progress on a musical benenfit for
>>>>endo we are planning in Strathroy, Ontario on July 5th, 2008 at the
>>>>Gemini. A website is being worked on and when we've got more info on it
>>>>I will post again. We are really excited about the event and have tons
>>>>of support from our community. Our goal is to have between 1000 and
>>>>1500 people come out.
>>>>We will have a variety of bands throughout the day and into the evening
>>>>that will appeal to different people.
>>>>Back to my questions - any input would be much appreciated...have an
>>>>awesome night!
>>>>Katie
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)