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Re: Is there anyone out there that has any input regarding my questions?
From: anonymous (anonymous@obgyn.net)
Wed May 30 12:45:00 2007
I have not had a hyst, but know women who have and they have not helped.
I would do whatever I could do if I were you to see a specialist about
getting it excised. I have hip pain, also. In fact, a few years ago
the pain got so bad I went to my doctor about it. She put me through a
battery of tests and finally diagosed me with fibromyalgia. It hurts
all the time, but I have flare ups where I feel like a 100 year old
woman, and I can't even touch my hips, I wake up if I roll on my side. I
also have pain in my upper arms, lower back, shins, and feet, to name a
few other spots that flare up. The concert sounds like a great idea. If
I was anywhere near Canada, I'd go. What do you plan to do with the
proceeds?
Good Luck!
At Wed, 30 May 2007, anonymous@obgyn.net wrote:
>
>Ok...
>>I've had endo since I was a teen (am 30 now), was diagnosed when I was
>>19, have had two laps. After my last one in Feb. 06, my OB told me the
>>endo was severe and wanted me to go on Lupron or have a hyst. I am
>>completely against Lupron (my personal opinion) and am unsure how a hyst
>>would help (I have endo elsewhere - not just reproductive). Anyways,
>>since the last lap, my endo has become much worse (it was really bad
>>before the lap and is now REALLY bad) and I went back to see my OB last
>>week. I asked her about excision and she said she could do it if I want
>>her to. She again pushed Lupron after having another lap or a hyst.
>>Here are my questions today...
>>1. How many of you are on the forum who have had a hyst? What results
>>did it give you?
>>2. How many of you experience excrutiating hip pain? I am an athletic
>>person (always have been) but don't do anything too pushy (walk, bike,
>>pilates etc.) In the last year my hip pain has increased dramatically
>>and am now at the point it hurts every step I take. I feel week and
>>feel like my hips could give out at any moment. My OB says she's seen
>>it many times and even knows of endo patients who use canes. This
>>scares me to death and am curious to know what others think about this.
>>How is endo doing this to my hips?
>>3. Are any of you patients of Dr. Lei in Toronto? Does he push drug
>>therapy? I've talked to my doc. about him (I think he's a he...) and
>>she said she would refer me to him if I wanted to.
>>Now...
>>On a lighter note - we have made some progress on a musical benenfit for
>>endo we are planning in Strathroy, Ontario on July 5th, 2008 at the
>>Gemini. A website is being worked on and when we've got more info on it
>>I will post again. We are really excited about the event and have tons
>>of support from our community. Our goal is to have between 1000 and
>>1500 people come out.
>>We will have a variety of bands throughout the day and into the evening
>>that will appeal to different people.
>>Back to my questions - any input would be much appreciated...have an
>>awesome night!
>>Katie
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