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Re: Weird question?? Pineapple juice makes my cramps WORSE....to Sherri
From: Angie (anonymous@obgyn.net)
Wed May 30 12:38:47 2007
Just so you know there is another test that isn't conclusive but also
not so invasive. My doctor did it to me to see if there was a
possability I had IC. It is called a potasium sensativity test. They
can do it in the doctors office and it's not that bad. They put a tiny
catheder into your bladder and insert some potasium solution. If it
burns when it hits your bladder then there is a good chance you have IC.
For me it just burned when I peed the potasium out so they said I was
negative, and there was no point doing the distension thing. It is just
a suggestion before being put under.
At Wed, 30 May 2007, Stephanie wrote:
>
>Good Morning Sherri...(i live in California, so its about 8:25 am here)
>Well i went to the doctors office yesterday morning...she just gave me
>pyridium (sp?) to help numb, well i could of just bought those over the
>counter, but i wanted to make sure i DIDNT have a UTI. She did give me
>a questioneer about IC, im gng to fill it out and take it to the new gyn
>im supposed to see on Friday. Im also keeping track of everything i
>eat, so i can see if certain things trigger the pain. The doctor also
>mentioned Elmiron, but the side effects are TOO scary, so that wont b an
>option. So, far im not burning as much as yesterday so thats a BIG
>help! Im starting to cramp a lil more bcuz of my period starting
>tomorrow..ahhh! LOL Well take care and thanks for the help, it means a
>lot in moments like these!! Steph :)
>
>At Wed, 30 May 2007, Sherri wrote:
>>
>>Stephanie,
>>I am so glad that my info could be helpful to you!! I totally know what
>>you're going through. I was diagnosed with IC in 2000, so it's been 7
>>years now. The worst thing about it, besides the PAIN, is that it is
>>also a chronic problem with no cure and very little ways to "manage" it.
>>There's a med called Elmiron that's supposed to help with the pain and
>>help repair the bladder lining, but one of it's major side effects is
>>hair loss! I refused to try that med,because I knew some women that had,
>>and they did have hair loss (ALOT for 1 ,A little for the others). Since
>>I won't take it though, my urologists treats me like I'm not following
>>his advise, so he gets really hateful about that, but, whatever, it's my
>>body, my choice, right? Also, the women that I know of that took it said
>>he did not relieve their pain,burning, frequency,etc. at all.
>>Hopefully, your doctor will be willing to listen to you and try to help,
>>or give a referral to urology if you need one. I hope it goes well for
>>you, and please do let me know what happens!! We IC and endo sufferers
>>need to stick together!! Good Luck!------Sherri
>>
>>At Tue, 29 May 2007, Stephanie wrote:
>>>
>>>Thank you so much Sherri!! Yes this sujbect has thrown me off, but its
>>>been making more and more sense now. I have done even more reading, and
>>>im gng in to see my doctor today. I cant even sit down here at work,
>>>cause everything in my insides burns. It so uncomfortable. Last night
>>>i just cried in the toilet because it hurt so much to go. I just want
>>>some relief, and since im about to start my period on Thursday, my
>>>crampings are getting worse. Im just full of problems and complaints!!
>>>LOL...Thanks for your help, and sure will email you once i get out of my
>>>doctors appt today to see what they told me. Thank You. How long have
>>>u had IC for?
>>>
>>>At Tue, 29 May 2007, Sherri wrote:
>>>>
>>>>At Sun, 27 May 2007, Stephanie wrote:
>>>>>Hello,Stephanie,
>>>>
>>>>What your describing does sound alot like it could be from IC
>>>>(interstitial cystitis) Alot of endo patients also have IC, including
>>>>myself. The test they do to diagnose IC is usually done by a urologist
>>>>and it is called a cystoscopy/bladder distention. It's generally an
>>>>outpatient surgery, but the do use general anesthia (spelling?) to put
>>>>you to sleep while they do the procedure. They use some small
>>>>instrument called a cystscope that they put in you, through your natural
>>>>opening,so it can go into the bladder. It has a light or something on
>>>>it that allows them to see the inside/lining of the bladder. Usually,
>>>>if it's IC there are tiny pin-point hemorrages(spelling?) in the lining
>>>>of the bladder. Supposedly, that's what causes some of the pain of the
>>>>bladder. Basically, you are constantly bleeding (although tiny amounts)
>>>>inside your bladder b/c of these tiny holes, this bleeding inflames the
>>>>lining of your bladder and causes symptoms of pain,UTI symptoms like
>>>>burning when you urinate,frequency of urination, feeling like your
>>>>bladder is full, but when you try to "go", nothing or only a trickle
>>>>comes out,etc. (I have it and I have the burning feeling
>>>>constantly,whether I've just "gone" or not,the burning sensation is
>>>>ever-present) The reason they tell IC patients not to drink or eat
>>>>anything really acidic,is b/c it will cause the pain and burning
>>>>sensation to increase(my doc calls them "flare-ups" when it happens to
>>>>me)but, I tell him it can't be a flare-up if it never stops burning!
>>>>But, yes orange,pineapple,cranberry,lemonade,any of those juices do
>>>>cause me increased pain. Also, if I eat any citrus fruits I get really
>>>>increased PAIN. The other part of the procedure called a bladder
>>>>distention-while you are under-they fill your bladder to its maximum
>>>>capacity to see how much fluid you can hold in there, b/c most IC
>>>>patients,including myself can only hold very small amounts of urine in
>>>>our bladder before we HAVE TO "GO"!! Also, the bladder distenion itself
>>>>is sometimes helpful in reducing the amount of pain (for a while at
>>>>least)so in this case the procedure they do to diagnose IC is also the
>>>>same procedure they may try in the begining to treat IC. Hopefully,
>>>>you'll read this and I want you to know you're not alone with this.
>>>>Google or whichever server you use the words IC or interstitial cystitis
>>>>and I'm sure you'll find a ton of info out there. You should probably
>>>>get a urologist, if you don't have one already, and tell them that you
>>>>think you may have IC,and maybe get the procedures done. I hope this is
>>>>helpful to you!! When I first was diagnosed with IC I had never even
>>>>heard of it,and I wish there would have been someone out there somwhere
>>>>that I could have talked to. It is most definately not in your
>>>>head,sweetie, it's in your bladder!! Good Luck! Let me know if you have
>>>>some more questions or just wanna talk to someone who knows what you're
>>>>going through. :)-Sherri
>>>>
>>>>>Hello, thanks for the reply, you mentioned to be checked out for
>>>>>Intestitial Cystitis, what type of testing do i need to do for that. Ive
>>>>>heard of this before but need more info. Thanks. Steph :)
>>>>>
>>>>>At Sat, 26 May 2007, anonymous wrote:
>>>>>>
>>>>>>Have you been checked out for Interstitial Cystitis? I'm asking because
>>>>>>with IC acidic food and drink can be very painful when they hit the
>>>>>>bladder. With a typical bladder infection cranberry juice is very
>>>>>>helpful, but with IC it will cause great pain!
>>>>>>
>>>>>>Good luck!
>>>>>>
>>>>>>At Sat, 26 May 2007, Stephanie wrote:
>>>>>>>
>>>>>>>One more thing...i have a weird question...i have noticed that when i
>>>>>>>drink orange juice i start to have painful cramping, and its even worse
>>>>>>>when i drink pineapple juice! Its happened a few times now, so im not
>>>>>>>sure if its just in my head or if its happened to others also. Steph :)
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