Re: Help Doctors Given up on me
From: anonymous (anonymous@obgyn.net)
Wed May 30 10:34:07 2007
Hi,
I have been suffering from internal endo since 24!
There are so many options for you to make your wedding a grand success
and think about having kids later!
I have one kid and I think I am done! I was told that my prob may go
away after childbirth, but its gotten worse and now I am contemplating
laser surgery as hormonal options are not long term and with young
patients , it too early for hyst and such drastic measures.
Look for someone who is interetsed in helping you as a human being.You
doc sounds to me like majority of them out there who dont have the time
or the inclination to actually try to help someone in so much pain and
suffering!Unless you go thru something like this , i guess you cannot
ampathise and really understand what a person has to endure!
dont get pushed into taking a decision that you are NOT OK with!
Please take a second ,third or even more opinions until you are
satisfied with the course of treatment.As for the wedding, you can deal
with it in the short term and make it a grand success!
Good luck with your wedding and your treatment!
At Wed, 9 May 2007, Kate wrote:
>
>Hi Everyone
>I've basically had Endo since I was 16 but was only Diagnosed when I was
>21, for years the docs put me on a contsant stream of pain meds and the
>pill, without any breaks, then I was given a newish pill (well it was
>then) in injection form where it controls my period for a solid 3 months
>with no more pills to pop, they kept me on this for about 9 months to a
>year, until the doc was scared of causing long term effects with it, and
>so she then put me on to the Implanon, (which is great and do
>recommend), the implanon (for those who do not know) is basically the
>pill in a stick shape that is inserted into your arm and it last for 3
>years.
>Well I'm coming up to my 3rd year, and it's not working as well as it
>should, and my Doctor has given me till december when the implant comes
>out to pick either having a coil inserted (which lasts 5yrs) or to get
>pregnant.
>Now I happen to be engaged, and I'm due to get married 3 months after
>the implant comes out, and I do want to try and start to have a family,
>but the doctor has said that if I pick family then she is not going to
>give me anything, nothing to control the bleeding or the pain, but I
>don't want to start a family until after I'm married so I'm either going
>to be having a period on my wedding day and NIGHT and in pain walking
>down the aisle or I'm going to be 3 months pregnant walking down the
>aisle and I don't want either.
>There has to be other alternatives?
>I don't want to be TOLD when I can have a family because it may OR MAY
>NOT cure my endo as theres a big chance that it might come back.
>I want to have a family when I'm ready and not when it's forced upon me
>by my doctor.
>Do anyone have any ideas or alternatives that can help?
>At this stage I think that I'd probably try anything
>Thanks in advance
>Kate