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Re: Weird question?? Pineapple juice makes my cramps WORSE....to Sherri
From: Stephanie (anonymous@obgyn.net)
Wed May 30 10:34:00 2007
Good Morning Sherri...(i live in California, so its about 8:25 am here)
Well i went to the doctors office yesterday morning...she just gave me
pyridium (sp?) to help numb, well i could of just bought those over the
counter, but i wanted to make sure i DIDNT have a UTI. She did give me
a questioneer about IC, im gng to fill it out and take it to the new gyn
im supposed to see on Friday. Im also keeping track of everything i
eat, so i can see if certain things trigger the pain. The doctor also
mentioned Elmiron, but the side effects are TOO scary, so that wont b an
option. So, far im not burning as much as yesterday so thats a BIG
help! Im starting to cramp a lil more bcuz of my period starting
tomorrow..ahhh! LOL Well take care and thanks for the help, it means a
lot in moments like these!! Steph :)
At Wed, 30 May 2007, Sherri wrote:
>
>Stephanie,
>I am so glad that my info could be helpful to you!! I totally know what
>you're going through. I was diagnosed with IC in 2000, so it's been 7
>years now. The worst thing about it, besides the PAIN, is that it is
>also a chronic problem with no cure and very little ways to "manage" it.
>There's a med called Elmiron that's supposed to help with the pain and
>help repair the bladder lining, but one of it's major side effects is
>hair loss! I refused to try that med,because I knew some women that had,
>and they did have hair loss (ALOT for 1 ,A little for the others). Since
>I won't take it though, my urologists treats me like I'm not following
>his advise, so he gets really hateful about that, but, whatever, it's my
>body, my choice, right? Also, the women that I know of that took it said
>he did not relieve their pain,burning, frequency,etc. at all.
>Hopefully, your doctor will be willing to listen to you and try to help,
>or give a referral to urology if you need one. I hope it goes well for
>you, and please do let me know what happens!! We IC and endo sufferers
>need to stick together!! Good Luck!------Sherri
>
>At Tue, 29 May 2007, Stephanie wrote:
>>
>>Thank you so much Sherri!! Yes this sujbect has thrown me off, but its
>>been making more and more sense now. I have done even more reading, and
>>im gng in to see my doctor today. I cant even sit down here at work,
>>cause everything in my insides burns. It so uncomfortable. Last night
>>i just cried in the toilet because it hurt so much to go. I just want
>>some relief, and since im about to start my period on Thursday, my
>>crampings are getting worse. Im just full of problems and complaints!!
>>LOL...Thanks for your help, and sure will email you once i get out of my
>>doctors appt today to see what they told me. Thank You. How long have
>>u had IC for?
>>
>>At Tue, 29 May 2007, Sherri wrote:
>>>
>>>At Sun, 27 May 2007, Stephanie wrote:
>>>>Hello,Stephanie,
>>>
>>>What your describing does sound alot like it could be from IC
>>>(interstitial cystitis) Alot of endo patients also have IC, including
>>>myself. The test they do to diagnose IC is usually done by a urologist
>>>and it is called a cystoscopy/bladder distention. It's generally an
>>>outpatient surgery, but the do use general anesthia (spelling?) to put
>>>you to sleep while they do the procedure. They use some small
>>>instrument called a cystscope that they put in you, through your natural
>>>opening,so it can go into the bladder. It has a light or something on
>>>it that allows them to see the inside/lining of the bladder. Usually,
>>>if it's IC there are tiny pin-point hemorrages(spelling?) in the lining
>>>of the bladder. Supposedly, that's what causes some of the pain of the
>>>bladder. Basically, you are constantly bleeding (although tiny amounts)
>>>inside your bladder b/c of these tiny holes, this bleeding inflames the
>>>lining of your bladder and causes symptoms of pain,UTI symptoms like
>>>burning when you urinate,frequency of urination, feeling like your
>>>bladder is full, but when you try to "go", nothing or only a trickle
>>>comes out,etc. (I have it and I have the burning feeling
>>>constantly,whether I've just "gone" or not,the burning sensation is
>>>ever-present) The reason they tell IC patients not to drink or eat
>>>anything really acidic,is b/c it will cause the pain and burning
>>>sensation to increase(my doc calls them "flare-ups" when it happens to
>>>me)but, I tell him it can't be a flare-up if it never stops burning!
>>>But, yes orange,pineapple,cranberry,lemonade,any of those juices do
>>>cause me increased pain. Also, if I eat any citrus fruits I get really
>>>increased PAIN. The other part of the procedure called a bladder
>>>distention-while you are under-they fill your bladder to its maximum
>>>capacity to see how much fluid you can hold in there, b/c most IC
>>>patients,including myself can only hold very small amounts of urine in
>>>our bladder before we HAVE TO "GO"!! Also, the bladder distenion itself
>>>is sometimes helpful in reducing the amount of pain (for a while at
>>>least)so in this case the procedure they do to diagnose IC is also the
>>>same procedure they may try in the begining to treat IC. Hopefully,
>>>you'll read this and I want you to know you're not alone with this.
>>>Google or whichever server you use the words IC or interstitial cystitis
>>>and I'm sure you'll find a ton of info out there. You should probably
>>>get a urologist, if you don't have one already, and tell them that you
>>>think you may have IC,and maybe get the procedures done. I hope this is
>>>helpful to you!! When I first was diagnosed with IC I had never even
>>>heard of it,and I wish there would have been someone out there somwhere
>>>that I could have talked to. It is most definately not in your
>>>head,sweetie, it's in your bladder!! Good Luck! Let me know if you have
>>>some more questions or just wanna talk to someone who knows what you're
>>>going through. :)-Sherri
>>>
>>>>Hello, thanks for the reply, you mentioned to be checked out for
>>>>Intestitial Cystitis, what type of testing do i need to do for that. Ive
>>>>heard of this before but need more info. Thanks. Steph :)
>>>>
>>>>At Sat, 26 May 2007, anonymous wrote:
>>>>>
>>>>>Have you been checked out for Interstitial Cystitis? I'm asking because
>>>>>with IC acidic food and drink can be very painful when they hit the
>>>>>bladder. With a typical bladder infection cranberry juice is very
>>>>>helpful, but with IC it will cause great pain!
>>>>>
>>>>>Good luck!
>>>>>
>>>>>At Sat, 26 May 2007, Stephanie wrote:
>>>>>>
>>>>>>One more thing...i have a weird question...i have noticed that when i
>>>>>>drink orange juice i start to have painful cramping, and its even worse
>>>>>>when i drink pineapple juice! Its happened a few times now, so im not
>>>>>>sure if its just in my head or if its happened to others also. Steph :)
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