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Re: need advice, help -suffering from aadenomyosis(internal endo) for past 4-5 yrs
From: anonymous (anonymous@obgyn.net)
Wed May 30 09:36:07 2007
Thank you so much Dr.Daiter.You do take the time to go thru these
questions and respond .Helps a lot.Really appreciate it!
At Wed, 30 May 2007, Eric Daiter, MD wrote:
>
>There are some case reports of pain relief from adenomyosis with lupron,
>but lupron often has side effects. Hysterectomy is the usual treatment,
>but then you will no longer be fertile (cannot have babies). Adenomyosis
>does not have many treatment options that have been shown to be helpful,
>unfortunately!
>
>Good luck
>
>At Tue, 29 May 2007, ada wrote:
>>
>>I too suffer from adenomyosis, as well as endo. I have finally
>>scheduled a hysterectomy for the early fall to have my uterus removed
>>(will keep my ovaries). I have been told it is the only real treatment
>>for adenomyosis. I did try an ablation last may. I admit it did help
>>with the heavy bleeding but I still have a great deal of lower back
>>pain. I have decided since I will not be having any more children to
>>have the uterus removed to take care of the adeno. That leaves me with
>>just the endo to tackle! Good luck.
>>
>>t Tue, 29 May 2007, anonymous wrote:
>>>
>>>Hi ,
>>>
>>>I am suffering from internal endo( its on the inner lining of the
>>>uterus) for the past couple of yrs.What was first irregular and heavy
>>>periods later on turned into Adenomyosis.I was told that my preiod probs
>>>would go away after childbirth, but to my horror, I am still suffering
>>>and even more ,2 yrs after my delivery.My bleeding an dpain has gotten
>>>worse.Its a crippling and debilitating illness every month and need the
>>>next 2-3 days just to recover from a horribly painful and heavy period.
>>>I am surviving somehow on pain killers .The other medication that was
>>>earlier prescribed to me to reduce the internal bleeding in the
>>>"pockets" on the uterus lining , have now become useless and makes my
>>>period even worse , as it only temporarily helps to reduce the flow and
>>>then , the period actually gets prolonged and so does the pain , once
>>>the med is stopped!
>>>
>>>I know this is a pretty long story I am writing! but i have gone thru
>>>many of the other mails on this topic and I completely understand what
>>>its like to suffer this pain and how it affects your life.I had also
>>>taken medciation for postpartum depression and my psychiatrist was of
>>>the opinion that the periods will become more bearable once my mental
>>>health is restored to normal (prior to delivery)!
>>>
>>>Please help as I have a 2 yr old to look after in addition to coping
>>>with this every month.My husband is very supportive and I wouldnt have
>>>survuved this far without him!
>>>
>>>I am wondering if anyone has dealt with Adenomyosis and can help me get
>>>to the right doctor.I dont want to end up going from doc to doc ,
>>>waititng for treatments to work ! I have suffered so much that I give up
>>>, and then once again pull myself together and go on ,once my periods
>>>are over.
>>>
>>>I know this is so long , but thnks for having the patience to read it!
>>
>>--
>>Ada
>>
>--
>http://www.infertilitytutorials.com
>
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