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Re: need advice, help -suffering from aadenomyosis(internal endo) for past 4-5 yrs
From: Eric Daiter, MD (anonymous@obgyn.net)
Wed May 30 09:15:44 2007
There are some case reports of pain relief from adenomyosis with lupron,
but lupron often has side effects. Hysterectomy is the usual treatment,
but then you will no longer be fertile (cannot have babies). Adenomyosis
does not have many treatment options that have been shown to be helpful,
unfortunately!
Good luck
At Tue, 29 May 2007, ada wrote:
>
>I too suffer from adenomyosis, as well as endo. I have finally
>scheduled a hysterectomy for the early fall to have my uterus removed
>(will keep my ovaries). I have been told it is the only real treatment
>for adenomyosis. I did try an ablation last may. I admit it did help
>with the heavy bleeding but I still have a great deal of lower back
>pain. I have decided since I will not be having any more children to
>have the uterus removed to take care of the adeno. That leaves me with
>just the endo to tackle! Good luck.
>
>t Tue, 29 May 2007, anonymous wrote:
>>
>>Hi ,
>>
>>I am suffering from internal endo( its on the inner lining of the
>>uterus) for the past couple of yrs.What was first irregular and heavy
>>periods later on turned into Adenomyosis.I was told that my preiod probs
>>would go away after childbirth, but to my horror, I am still suffering
>>and even more ,2 yrs after my delivery.My bleeding an dpain has gotten
>>worse.Its a crippling and debilitating illness every month and need the
>>next 2-3 days just to recover from a horribly painful and heavy period.
>>I am surviving somehow on pain killers .The other medication that was
>>earlier prescribed to me to reduce the internal bleeding in the
>>"pockets" on the uterus lining , have now become useless and makes my
>>period even worse , as it only temporarily helps to reduce the flow and
>>then , the period actually gets prolonged and so does the pain , once
>>the med is stopped!
>>
>>I know this is a pretty long story I am writing! but i have gone thru
>>many of the other mails on this topic and I completely understand what
>>its like to suffer this pain and how it affects your life.I had also
>>taken medciation for postpartum depression and my psychiatrist was of
>>the opinion that the periods will become more bearable once my mental
>>health is restored to normal (prior to delivery)!
>>
>>Please help as I have a 2 yr old to look after in addition to coping
>>with this every month.My husband is very supportive and I wouldnt have
>>survuved this far without him!
>>
>>I am wondering if anyone has dealt with Adenomyosis and can help me get
>>to the right doctor.I dont want to end up going from doc to doc ,
>>waititng for treatments to work ! I have suffered so much that I give up
>>, and then once again pull myself together and go on ,once my periods
>>are over.
>>
>>I know this is so long , but thnks for having the patience to read it!
>
>--
>Ada
>
--
http://www.infertilitytutorials.com
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