ENDO Messages for May, 2007: Re: Just diagnosed

Re: Just diagnosed - need help and advice

From: anonymous (anonymous@obgyn.net)
Wed May 30 09:14:24 2007

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At Wed, 30 May 2007, anonymous wrote: >
>Hi ,
>
>I just recently discovered this site myself.All the info you can get
>here is really helpful.I have been suffering form this prob since age
>24!
>
>Its been many yrs and the pain and suffering goes on !
>
>For my age , as i am not even 30 yet, i am definately not considering
>and hormone /surgical procedures like hyst coz we r just too young for
>it.Well maybe hormone treatment ,but definately not surgery!
>
>Pls chk out these sites for more info, you may get other inputs and
>insights into the course of action u may want to consider!
>
>http://www.endo-resolved.com/specialist.html.
>http://www.alternativesurgery.com .
>http://www.endometriosissupport.com/ http://www.stopendometriosis.com/
>http://www.endo-resolved.com/testimonies.html .
>
>Please see if the above links help you in any way ,just tyring to
>help....
>
>Good luck
>
>At Tue, 29 May 2007, anonymous@obgyn.net wrote:
>>
>>I would definitely get a second opinion, it sounds a little bit like
>>your doctor is not up on her endo info. Not too many GYNs are, so I'm
>>not saying she is a bad MD.
>>
>>Someone who operates on women with endo at least weekly and is an expert
>>in doing laparoscopic surgery is who I would look for. Depending on
>>where you live that may be easier said than done, but it is worth the
>>trouble.
>>The endometriosis association has a couple of good books and I enjoyed
>>Endo for dummies that I got at Borders.
>>
>>Hope the info helps.
>>
>>Laura
>>At Tue, 29 May 2007, Beth wrote:
>>>
>>>Liz,
>>>You are definatly in the right place for good advice! There are many
>>>women on here with much more experience that me, but it all helps!
>>>I definatly recommend trying to find a specialist. I saw my regular
>>>gyno. for a few years before I found a specialist and what a
>>>difference! I'd recommend him to anyone! But, he's in Pittsburgh, PA so
>>>unless you're here, that doesnt' help you much.
>>>Someone on this very site pointed me to this website for specialists:
>>>http://www.geocities.com/endovictims/endodocs.html
>>>
>>>As for the hysterectomy, I would get a second opinion before doing that.
>>>Even if you get a hysterectomy, you still may have symptoms, as it is
>>>not a cure for endo.
>>>
>>>I agree with you...read all you can, do your research. Find a good
>>>doctor. and definatly use this website. I have gotten so much great
>>>advice from the women here...they all know how you feel.
>>>
>>>Good luck!
>>>Beth

I would definitely meet with an RE. With my own personal experience, I definitely believe an RE's main focus and goal is to preserve the fertility of a woman. >>>
>>>At Sun, 27 May 2007, Liz wrote:
>>>>
>>>>Hello all,
>>>>After one episode of severe pelvic pain (a ruptured cyst, probably) and
>>>>lots of visits to different doctors, I just had a laparoscopy a week ago
>>>>and was diagnosed with severe endometriosis. My doctor also told me she
>>>>wasn't able to remove the endo for fear of damaging the surrounding
>>>>organs (I'm guessing with my seriously limited knowledge that what she
>>>>was describing are adhesions everywhere, including my bowel). I've been
>>>>doing some research and reading - a lot, but it feels like it's only the
>>>>tip of the iceberg! - and am feeling overwhelmed, confused, scared...all
>>>>of it. I have a follow-up appointment with her in a week, and am trying
>>>>to prepare for it, and am also trying to learn as much as I can about
>>>>endo. Any help anyone can offer would be much appreciated! I'm
>>>>wondering:
>>>>
>>>>- What do I need to ask my doctor at this follow-up?
>>>>- Can my endo really not be removed or is this the result of seeing a
>>>>regular gynecologist instead of a specialist?
>>>>- How can I find a specialist?
>>>>- How long does it take to recover from a laparoscopy (it's been a
>>>>little over a week and I'm still tired and sore)?
>>>>- My doctor tpld me decide whether or not I want to have children before
>>>>i see her (I'm 26 - fat chance!!) and recommended I consider a
>>>>hysterectomy - is this something I should think about?
>>>>
>>>>Sorry for the ton of questions...this is some heavy stuff...thank you...

Next message: Eric Daiter, MD: "Re: need advice, help -suffering from aadenomyosis(internal endo) for past 4-5 yrs"
Previous message: anonymous: "Considering options to treat Adenomyosis- any exp.with them? any advie?"
In reply to: anonymous: "Re: Just diagnosed - need help and advice"

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