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Re: need advice, help -suffering from aadenomyosis(internal endo) for past 4-5 yrs
From: ada (anonymous@obgyn.net)
Tue May 29 21:18:26 2007
I too suffer from adenomyosis, as well as endo. I have finally
scheduled a hysterectomy for the early fall to have my uterus removed
(will keep my ovaries). I have been told it is the only real treatment
for adenomyosis. I did try an ablation last may. I admit it did help
with the heavy bleeding but I still have a great deal of lower back
pain. I have decided since I will not be having any more children to
have the uterus removed to take care of the adeno. That leaves me with
just the endo to tackle! Good luck.
t Tue, 29 May 2007, anonymous wrote:
>
>Hi ,
>
>I am suffering from internal endo( its on the inner lining of the
>uterus) for the past couple of yrs.What was first irregular and heavy
>periods later on turned into Adenomyosis.I was told that my preiod probs
>would go away after childbirth, but to my horror, I am still suffering
>and even more ,2 yrs after my delivery.My bleeding an dpain has gotten
>worse.Its a crippling and debilitating illness every month and need the
>next 2-3 days just to recover from a horribly painful and heavy period.
>I am surviving somehow on pain killers .The other medication that was
>earlier prescribed to me to reduce the internal bleeding in the
>"pockets" on the uterus lining , have now become useless and makes my
>period even worse , as it only temporarily helps to reduce the flow and
>then , the period actually gets prolonged and so does the pain , once
>the med is stopped!
>
>I know this is a pretty long story I am writing! but i have gone thru
>many of the other mails on this topic and I completely understand what
>its like to suffer this pain and how it affects your life.I had also
>taken medciation for postpartum depression and my psychiatrist was of
>the opinion that the periods will become more bearable once my mental
>health is restored to normal (prior to delivery)!
>
>Please help as I have a 2 yr old to look after in addition to coping
>with this every month.My husband is very supportive and I wouldnt have
>survuved this far without him!
>
>I am wondering if anyone has dealt with Adenomyosis and can help me get
>to the right doctor.I dont want to end up going from doc to doc ,
>waititng for treatments to work ! I have suffered so much that I give up
>, and then once again pull myself together and go on ,once my periods
>are over.
>
>I know this is so long , but thnks for having the patience to read it!
--
Ada
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