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Re: Just diagnosed - need help and advice
From: andrea (anonymous@obgyn.net)
Tue May 29 12:05:16 2007
Hi, M. Here is a site that may help you find a specialist:
http://www.womenssurgerygroup.com/physicians/
I would definately go to a specialist for your endo removal because most
women who go to just regular gynos don't get it all removed and have to
just keep going back for more and more surgeries. I am going to Dr.
John Dulemba in Denton, TX in July to have my first endo surgery and
I've also been reading a lot about this Dr. Redwine on here who is a
specialist. If you have Irritable Bowel Syndrome pain with your period,
I just tried an amazing drug called Bentyl and half of my period pain
was gone! Had no bloating and pressure down there like I always had.
This site is awesome and everyone is so nice and supportive on here!
At Sun, 27 May 2007, M wrote:
>
>Hey Liz
>Sorry to hear you were recently diagnosed with endo. Im also 26 was
>just diagnosed with endo in Jan 07. This forum and others are a great
>place for support and help.
>Like D said a hysterectomy doesn't cure endo. I'm sure others can tell
>you about having had it and still having pain.
>You should try and see an endo specialist for best results. I'm
>actually considering traveling and seeing Dr. Redwine in Maine in the
>future when I get some other health issues straight, etc. I'm still
>learning a lot about endo myself.
>Take it easy and take one day at a time. Of course everyones body heals
>differently.
>Hope you feel better!
>Melissa
> At Sun, 27 May 2007, Liz wrote:
>>
>>Hello all,
>>After one episode of severe pelvic pain (a ruptured cyst, probably) and
>>lots of visits to different doctors, I just had a laparoscopy a week ago
>>and was diagnosed with severe endometriosis. My doctor also told me she
>>wasn't able to remove the endo for fear of damaging the surrounding
>>organs (I'm guessing with my seriously limited knowledge that what she
>>was describing are adhesions everywhere, including my bowel). I've been
>>doing some research and reading - a lot, but it feels like it's only the
>>tip of the iceberg! - and am feeling overwhelmed, confused, scared...all
>>of it. I have a follow-up appointment with her in a week, and am trying
>>to prepare for it, and am also trying to learn as much as I can about
>>endo. Any help anyone can offer would be much appreciated! I'm
>>wondering:
>>
>>- What do I need to ask my doctor at this follow-up?
>>- Can my endo really not be removed or is this the result of seeing a
>>regular gynecologist instead of a specialist?
>>- How can I find a specialist?
>>- How long does it take to recover from a laparoscopy (it's been a
>>little over a week and I'm still tired and sore)?
>>- My doctor tpld me decide whether or not I want to have children before
>>i see her (I'm 26 - fat chance!!) and recommended I consider a
>>hysterectomy - is this something I should think about?
>>
>>Sorry for the ton of questions...this is some heavy stuff...thank you...
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