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Re: About to give up.....to StephanieFrom: josie (anonymous@obgyn.net)Fri May 25 13:22:22 2007
Steph, no worries...I think that many regular OB's who may be great delivering babies just don't have the experience to handle the tough cases. That was my impression of mine. Their attitude is "I took it out so now you should be better." I don't think they realize that they make us feel like their isn't hope to improve, when the reality is that they don't have the skills to treat us. As far as the PT, I would not have imagined how much it would help until I went several times. I have backslid a little because I'm a week away from my period, but it did improve after months of feeling the same horrible pressure/pain. Maybe it can work for you too! A little relief goes a long way. It won't take away the endo, but it could relieve the spasms we can get from internal pain. By the way, my physical therapist went through endo diagnosis 15 years ago and her first doctor told her that she was probably bipolar! At Fri, 25 May 2007, Stephanie wrote: > >Hello Josie...well im still in pain, but at least my doctor decided to >refill my darvocet for now. So, that should help a lil. It is very sad >to leave the doctors office feeling like your crazy and that the pain is >all in your mind. For a while my doc was understanding, but she >probably just got tired of me complaining all the time. I have an appt >w/a new gyn and im gng to ask him about PT and maybe some pain >management. Thanks for your response, it helps a lot to hear from >others! Steph :) > >At Fri, 25 May 2007, josie wrote: >> >>I've been reading this thread and find it interesting how many women >>have gone through this same routine. At my follow up appointment after >>having my ovary removed, I told the doctor that I had the same level of >>pain as before. Instead of trying to come up with a solution to help, >>he said, "guess it's time for you to start pushing through the pain." I >>wanted to tell him that I wasn't delivering a baby, but had pelvic pain >>that put me at 20% capacity from my previous life and just wanted to get >>back to normal! I went home feeling very demoralized. Luckily the next >>day I had an appointment with a urologist who said that too many women >>with pelvic pain feel abandoned by doctors who stop trying to figure it >>out. I posted this info before, but he prescribed physical therapy to >>help with the muscles that have been in spasm from the organ pain and he >>prescribed B&O suppositories which are supposed to work directly on the >>pelvic floor. I am amazed at how much it has helped and while the >>problems are still there, it has improved (I feel like I'm at 70% now). >>Keep looking, ask for a referral to PT, ask for the suppositories (they >>work, even though it is just another gross thing to deal with!). I am >>just bummed I stuck with this other doctor, when I always left the >>appointment feeling like he was humoring me. What a difference to have >>caregivers who care!!! It may be like finding a needle in the haystack, >>but keep looking until you find someone you respect and that respects >>you. Hope you are feeling better.... >> >>At Fri, 25 May 2007, Cari wrote: >>> >>>I know, and it just enrages me. That plus the judgement. Wasn't pain >>>medicine developed to help those who need it? I have learned from my >>>experience that is for sure, no more do I judge others in pain... >>> >>>What I really wanted to say is that after my last lap, three weeks ago, >>>one of my docs came in to my hospital room and talked to me in detail >>>about the surgery and actually took the time to answer my dad's >>>questions (my mom passed away and my boyfriend could not be there so my >>>dad has become my surgery buddy) which was so cool. The jist of what he >>>said at one point is that our periods are not supposed to be >>>debilitating at all. Yes, cramping is normal but it should never be >>>severe and for too long docs wrote it off as part of being a woman. Now >>>that I know that, I feel better to have someone side with me for a >>>change. I used to have cramps and often they were pretty bad but a >>>couple of Advil always did the trick...with endo and adenomyosis, I find >>>Advil doesn't cut it at all. Doctors on the whole don't get that. A >>>few that focus on endo get it, but most just don't. Typical thinking is >>>that women are drama queens. >>> >>>I just wish the docs knew how humiliating this process can >>>be...constantly subjected to ultrasounds and exams of our most personal >>>private body parts, being probed and treated like pariahs for asking for >>>medicine...and how stigmatized pain meds have become. Where is the >>>compassion? I have put a career in archaeology on hold because of >>>pain... >>> >>>Sorry for the rant ladies, I am just never going to understand it >>>all...but maybe if we continue to speak up and create awareness, who >>>knows? >>> >>>-- >>>Cari >>> >>>At Thu, 24 May 2007, Stephanie wrote: >>>> >>>>Hey Cari, i totally agree that we need to do something to let the >>>>"world" know what kind of chronic pain we suffer and how much it affects >>>>our lifes! And its very true that everyone thinks that there just NORMAL >>>>cramps. It drives me NUTS to hear people tell me that. Like you said, >>>>only if they would see us at home, and how we spend our evenings crying >>>>and in bed, only then they would understand, that it isnt just NORMAL >>>>cramps! Sometimes, i explain to others that the pain is like the pain >>>>going into labor! Those are the types of cramps we deal with on a daily >>>>basis! Thanks for the words of encouragement, they mean a lot to me!! >>>>Steph :) >>>> >>>>At Thu, 24 May 2007, Cari wrote: >>>>> >>>>>Stehanie, >>>>> >>>>>No great advice but words of encouragement, I have been there. What >>>>>enrages me is that this is a chronic pain condition, no cure etc and we >>>>>are treated as though we are medication seeking addicts. Docs prescribe >>>>>ibuprofen like its candy saying that the pain is merely inflammation etc >>>>>and that makes me mad...once upon a time, a couple of Advil made my >>>>>cramps melt away. Now with endo and adenomyosis, my ovulation and >>>>>periods are horrific. Talk candidly with the doc, explain that taking >>>>>motrin is great but the pain becomes unbearable and incapacitating and >>>>>you want help. >>>>> >>>>>I often wonder, if we had some other "more tragic" (not my words, my >>>>>ex-doc's) disease that caused pain the doctors would bend over backwards >>>>>to help but too many doctors assume our cramps are not that hard to live >>>>>with. They should come to our homes and see us curled up in the fetal >>>>>position with pain tearing out our insides. I can't even tolerate my >>>>>boyfriend to touch me just to rub my back because it just sends pain >>>>>shockwaves thru me... >>>>> >>>>>I don't know what it will take to raise awareness...maybe if we keep >>>>>fighting... >>>>> >>>>>At Thu, 24 May 2007, Stephanie wrote: >>>>>> >>>>>>Hello everyone...well iv posted a few messages this week, due to this >>>>>>excrutiating pain episode i had on Monday night. Quick brief..last week >>>>>>i ovulated and my pelvic/back pain for some reason increased, since then >>>>>>iv been taking Darvocet every 4 hours, otherwise i cant even work. So, >>>>>>i called my gyn and asked for something stronger at least until this >>>>>>pain subsided a little. Well i get a call back on Wednesday from the >>>>>>nurse telling me that the doc would only prescribe me IBUPROFEN 600 mlg >>>>>>every 6 hours!! Later on in that day i called back to get a refill on my >>>>>>darvocet, since i only had about 3 left. Well the doctor DENIED it. >>>>>>When i asked why, the nurse just said that the doctor would only >>>>>>prescribe ibuprofen for now. It made me SO MAD! I cant believe she said >>>>>>that. After i had told her that my pain had INCREASE and not even >>>>>>Darvocet was helping and now, they wont even give me a refill! Im so >>>>>>upset, i just cried!! I have an appt next week w/a new gyn (who does >>>>>>excision on endo) but im just so worried, since i still have to wait >>>>>>till June 1st and no pain meds. Then i feel that they must think im >>>>>>some drug freak or something, i cant believe they cant understand how >>>>>>painful this can be!!! Sorry for the long story once again....I can >>>>>>totally understand all of the other woman who feel like giving up! I >>>>>>guess we get to a point we just dnt know what else to do!! Hope everyone >>>>>>else is having a better day!! :) Steph >>>
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