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Re: About to give up.....to Stephanie
From: Stephanie (anonymous@obgyn.net)
Fri May 25 12:52:37 2007
Hello Josie...well im still in pain, but at least my doctor decided to
refill my darvocet for now. So, that should help a lil. It is very sad
to leave the doctors office feeling like your crazy and that the pain is
all in your mind. For a while my doc was understanding, but she
probably just got tired of me complaining all the time. I have an appt
w/a new gyn and im gng to ask him about PT and maybe some pain
management. Thanks for your response, it helps a lot to hear from
others! Steph :)
At Fri, 25 May 2007, josie wrote:
>
>I've been reading this thread and find it interesting how many women
>have gone through this same routine. At my follow up appointment after
>having my ovary removed, I told the doctor that I had the same level of
>pain as before. Instead of trying to come up with a solution to help,
>he said, "guess it's time for you to start pushing through the pain." I
>wanted to tell him that I wasn't delivering a baby, but had pelvic pain
>that put me at 20% capacity from my previous life and just wanted to get
>back to normal! I went home feeling very demoralized. Luckily the next
>day I had an appointment with a urologist who said that too many women
>with pelvic pain feel abandoned by doctors who stop trying to figure it
>out. I posted this info before, but he prescribed physical therapy to
>help with the muscles that have been in spasm from the organ pain and he
>prescribed B&O suppositories which are supposed to work directly on the
>pelvic floor. I am amazed at how much it has helped and while the
>problems are still there, it has improved (I feel like I'm at 70% now).
>Keep looking, ask for a referral to PT, ask for the suppositories (they
>work, even though it is just another gross thing to deal with!). I am
>just bummed I stuck with this other doctor, when I always left the
>appointment feeling like he was humoring me. What a difference to have
>caregivers who care!!! It may be like finding a needle in the haystack,
>but keep looking until you find someone you respect and that respects
>you. Hope you are feeling better....
>
>At Fri, 25 May 2007, Cari wrote:
>>
>>I know, and it just enrages me. That plus the judgement. Wasn't pain
>>medicine developed to help those who need it? I have learned from my
>>experience that is for sure, no more do I judge others in pain...
>>
>>What I really wanted to say is that after my last lap, three weeks ago,
>>one of my docs came in to my hospital room and talked to me in detail
>>about the surgery and actually took the time to answer my dad's
>>questions (my mom passed away and my boyfriend could not be there so my
>>dad has become my surgery buddy) which was so cool. The jist of what he
>>said at one point is that our periods are not supposed to be
>>debilitating at all. Yes, cramping is normal but it should never be
>>severe and for too long docs wrote it off as part of being a woman. Now
>>that I know that, I feel better to have someone side with me for a
>>change. I used to have cramps and often they were pretty bad but a
>>couple of Advil always did the trick...with endo and adenomyosis, I find
>>Advil doesn't cut it at all. Doctors on the whole don't get that. A
>>few that focus on endo get it, but most just don't. Typical thinking is
>>that women are drama queens.
>>
>>I just wish the docs knew how humiliating this process can
>>be...constantly subjected to ultrasounds and exams of our most personal
>>private body parts, being probed and treated like pariahs for asking for
>>medicine...and how stigmatized pain meds have become. Where is the
>>compassion? I have put a career in archaeology on hold because of
>>pain...
>>
>>Sorry for the rant ladies, I am just never going to understand it
>>all...but maybe if we continue to speak up and create awareness, who
>>knows?
>>
>>--
>>Cari
>>
>>At Thu, 24 May 2007, Stephanie wrote:
>>>
>>>Hey Cari, i totally agree that we need to do something to let the
>>>"world" know what kind of chronic pain we suffer and how much it affects
>>>our lifes! And its very true that everyone thinks that there just NORMAL
>>>cramps. It drives me NUTS to hear people tell me that. Like you said,
>>>only if they would see us at home, and how we spend our evenings crying
>>>and in bed, only then they would understand, that it isnt just NORMAL
>>>cramps! Sometimes, i explain to others that the pain is like the pain
>>>going into labor! Those are the types of cramps we deal with on a daily
>>>basis! Thanks for the words of encouragement, they mean a lot to me!!
>>>Steph :)
>>>
>>>At Thu, 24 May 2007, Cari wrote:
>>>>
>>>>Stehanie,
>>>>
>>>>No great advice but words of encouragement, I have been there. What
>>>>enrages me is that this is a chronic pain condition, no cure etc and we
>>>>are treated as though we are medication seeking addicts. Docs prescribe
>>>>ibuprofen like its candy saying that the pain is merely inflammation etc
>>>>and that makes me mad...once upon a time, a couple of Advil made my
>>>>cramps melt away. Now with endo and adenomyosis, my ovulation and
>>>>periods are horrific. Talk candidly with the doc, explain that taking
>>>>motrin is great but the pain becomes unbearable and incapacitating and
>>>>you want help.
>>>>
>>>>I often wonder, if we had some other "more tragic" (not my words, my
>>>>ex-doc's) disease that caused pain the doctors would bend over backwards
>>>>to help but too many doctors assume our cramps are not that hard to live
>>>>with. They should come to our homes and see us curled up in the fetal
>>>>position with pain tearing out our insides. I can't even tolerate my
>>>>boyfriend to touch me just to rub my back because it just sends pain
>>>>shockwaves thru me...
>>>>
>>>>I don't know what it will take to raise awareness...maybe if we keep
>>>>fighting...
>>>>
>>>>At Thu, 24 May 2007, Stephanie wrote:
>>>>>
>>>>>Hello everyone...well iv posted a few messages this week, due to this
>>>>>excrutiating pain episode i had on Monday night. Quick brief..last week
>>>>>i ovulated and my pelvic/back pain for some reason increased, since then
>>>>>iv been taking Darvocet every 4 hours, otherwise i cant even work. So,
>>>>>i called my gyn and asked for something stronger at least until this
>>>>>pain subsided a little. Well i get a call back on Wednesday from the
>>>>>nurse telling me that the doc would only prescribe me IBUPROFEN 600 mlg
>>>>>every 6 hours!! Later on in that day i called back to get a refill on my
>>>>>darvocet, since i only had about 3 left. Well the doctor DENIED it.
>>>>>When i asked why, the nurse just said that the doctor would only
>>>>>prescribe ibuprofen for now. It made me SO MAD! I cant believe she said
>>>>>that. After i had told her that my pain had INCREASE and not even
>>>>>Darvocet was helping and now, they wont even give me a refill! Im so
>>>>>upset, i just cried!! I have an appt next week w/a new gyn (who does
>>>>>excision on endo) but im just so worried, since i still have to wait
>>>>>till June 1st and no pain meds. Then i feel that they must think im
>>>>>some drug freak or something, i cant believe they cant understand how
>>>>>painful this can be!!! Sorry for the long story once again....I can
>>>>>totally understand all of the other woman who feel like giving up! I
>>>>>guess we get to a point we just dnt know what else to do!! Hope everyone
>>>>>else is having a better day!! :) Steph
>>
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