ENDO Messages for May, 2007: Re: 19 with Endo.. How fast can it come back?

Re: 19 with Endo.. How fast can it come back?

From: anonymous@obgyn.net
Sun May 6 03:01:23 2007

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I have to say it is nice to know this information. I was told that there was Endo deep in my pelvis.

The having children thing... I was not told that I would never be able to have children. I was told that it may not be the easiest of things, especially if things get worse. In January I went to the ER because the pain and bleeding (that i'd been having for about 3 weeks at that time) was so bad I thought maybe it was a ruptured cyst. Two days later I got a call that I had Chlamydia. They gave me the strongest antibiotics for this and it is cleared. The only thing is I had it for about 7 months before I ever found out and the gyno that I saw looked me straight in the eyes very serious telling me that this was the number one cause of infertility. My surgeon did tell me that if scarring develops heavy enough in my tubes/ovaries that I may not be able to have children. I have heard many success stories with people who have Endo and being able to have children naturally.

As far as the surgeon thing goes... it sounds like the greatest of plans and with the stress level I am at right now it almost seems as though the pain is getting worse. I know I may not be able to get in soon at all to see an Endo specialist.

The spinal tap... what a story there. I had my surgery on a Monday. They told me that the gas can cause chest and neck pain and I was fine with that, I had it but I tried to drink and eat what I could and keep it down (which was not much). On Wednesday morning around 4am (Yes, I do remember) I started getting sick to my stomach. The first couple of times I figured it was just the food i'd eaten earlier and it wasn't resting well. But the more times I vomitted the worse the pain in my neck got. I tried to relax, tried to fall back asleep, I tried to just breathe... but I eventually got to the point where I could not stop throwing up and there was nothing in my stomach which almost made it worse. The worse the pain got the more I got sick and the more I got sick the worse the pain got. My mom called my surgeon and he told me it couldn't be from the gas and that he thought it was Meningitis. I was told to go to the walk in clinic when it opened but my mom took me to the ER, since the doctor told me I needed a spinal tap.

Right now my stress levels are very high and I was wondering, does this contribute to the pain level caused by Endo?

I appreciate all the facts and information. It is greatly appreciated.

~*Me*~

At Sat, 28 Apr 2007, Eric Daiter, MD wrote: >
>The endometriosis usually doesn't grow that significantly in 1-3 months,
>even when aggressive, so it might be that they were not able to remove a
>lot of the deeper implants. Sometimes medical management can help, but
>provera can depress your mood and lupron can give hot flashes and
>irritability. Some choices? You might consider a more aggressive
>surgeon if you can find an RE with an interest in endometriosis in the
>area that you moved to.
>
>A spinal tap? What was that done for?
>
>Cervical dysplasia is usually treatable prior to malignancy when found
>in the earlier stages and treated seriously. You might need a cone
>biopsy or LEEP (whatever they do in your location to remove the bad
>cells)
>
>I did not hear why you can never have kids. The endometriosis is
>treatable and if you still have a significant pelvic factor, then IVF
>can be useful. New stuff is always being developed as well.
>
>Keep up your spirits and try to find a local endometriosis surgeon to
>review your records critically and develop a plan to return you to a
>pain free or at least tolerable existence.
>
>Good Luck
>
>http://www.drericdaitermd.com
>

Next message: Trisha: "Re: Vaginal Ultrasound for a Virgin-Jessica"
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