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Re: ADVICE NEED!!! Message for D
From: Stephanie (anonymous@obgyn.net)
Sat May 5 13:14:10 2007
Hello D....well iv been on BC for the last year and changed 3 times
different ones. They do help w/my flow but it does nothing w/my pain.
Now im still on BC and i dnt have any more side effects with it. I get
really bad nausea w/BC. In regards to Lupron, iv done some research and
it freaks me out! I just hope im one of the FEW who MAYBE it will do
something more than just give me really bad side effects! Im so
desperate now, that im willing to try it! Even though i know how bad it
can be. Im a member of that yahoo group, so im gng to check out the
article, that way maybe i can give it a try and appeal so i can go to a
specialist out of my network. For now i feel much better, not as
frustruated. I had an appt w/my gyn and feel much better, she also
prescribed me some sleeping meds, since iv been only sleeping like 2 hrs
a night! Thanks for your advice, its nice to have others who understand
and give advice!! Steph :)
At Thu, 3 May 2007, D wrote:
>
>Hi Stephanie -
>
>I'm glad your doctor gave you some more pain meds - it might be a good
>idea to ask her for a referral to pain management. I'm not a fan of
>Lupron - even if it works, you can only take it for one year and the
>pain usually returns with your menstrual cycle. I'd like to ask those
>doctors what their plan is after that! Please don't take the Lupron
>without researching it and your other options, too!
>
>Endo can be removed from the bladder, but it is a delicate area and
>requires a doctor who has the skills to excise it. If there are no
>doctors who excise endo in your HMO network you can appeal for approval
>to go out of network to one who does - it's worth a try! The Endo
>Research Center has a publication on fighting your HMO available through
>their yahoo group (in the "Files" section, it requires membership in the
>group):
>http://groups.yahoo.com/group/erc/
>
>Have you tried continuous birth control pills? They aren't a permanent
>fix either, but many women get good results without as many side effects
>as Lupron. I got pretty good results at first on a pill called Levlen
>(after the 3 months it took for my body to adjust to it). I went from
>8-10 percocet a day down to 1-3 vicodin, and some days none. It worked
>fairly well for about 6 or 7 months, then the pain and symptoms started
>to come back.
>
>I hope this helps!
>
>--
>D.
>
>At Thu, 3 May 2007, Stephanie wrote:
>>
>>Hello Amanda...Thanks for your feedback, its nice to get some info from
>>others who are on this shot. Thanks! Steph :)
>>
>>At Thu, 3 May 2007, Amanda wrote:
>>>
>>>At Thu, 3 May 2007, Stephanie wrote:
>>>>
>>>>Hello everyone its me Steph once again!! Well i need to vent and get
>>>>some advice, because im so upset and frustruated!! :( Briefly...i had a
>>>>lap on 4/20/07 and i was diagnosed w/endo stage 3. Well im starting my
>>>>period tomorrow, and i am cramping really bad and my UTI sensation
>>>>(burning and pain) is horrible! (i do know that the first period after a
>>>>lap is painful than usual) I have to hold my breath everytime i urinate
>>>>because it just HURTS so much! Yesterday i went in to see my doctors
>>>>assistant (to check if i did have a UTI) and waited for 2 HOURS, just
>>>>for her to tell me that no i dnt have a UTI and that i was SUPPOSED to
>>>>see the actual DR and not her because my doctor is the one who needs to
>>>>explain my next step. She did go over my surgical report briefly and
>>>>said that the reason im having such pain and sensation of a uti is
>>>>because my endo is on my bladder and the doc didnt remove it. She said
>>>>its a very sensible area, and the doctor cant remove it.(she did give me
>>>>more pain meds) So, now im gng in tomorrow, so that the doctor could go
>>>>over the Lupron shot, which is gng to be the next step in my treatment.
>>>>I wish i could go see a specialist, but w/my blue shield HMO, i cant
>>>>find one. I live in Central California. If anyone knows of a doctor
>>>>around my area even a OBGYN that has more knowledge of Endo and accepts
>>>>HMO i would gretly appreciate the info. I cant change to PPO until next
>>>>year! Thanks Steph!! :)
>>>
>>>Hi Steph,
>>>
>>>Just a warning...I'm on Lupron right now and it isn't really helping
>>>with the pain. Ask your doctor if your pain could be a result of scar
>>>tissue caused by the endo. If this is the case, I don't think the
>>>Lupron shot will help you.
>>>
>>>--
>>>Amanda
>>>
>>>To being pain free...cheers!
>>>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
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