ENDO Messages for May, 2007: Re: Help the crazy girl adnexal mass and endo...?

Re: Help the crazy girl adnexal mass and endo...?

From: D (anonymous@obgyn.net)
Tue May 1 20:28:02 2007

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Previous message: Cari: "Re: Help the crazy girl adnexal mass and endo...? LAURA"
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Hi Cari -

Only your doctor can tell you for sure why they didn't remove all your endo, but there are some common reasons for why doctors do this. One reason is if there is endo on certain areas like the bowels and bladder it can't be burned off because the heat could damage the healthy tissue. If your doctor burns the endo off (also called ablation, fulgeration, or cauterization) and doesn't feel confident to excise it (cut it out) from areas where it can't be burned they have to leave it behind. Some doctors who do excision still don't have the skills to remove it from tricky areas, and they may decide to leave disease in those areas rather than risk damage.

I've heard from a few women that their doctors didn't remove all the endo they found because they didn't think it was "active" - which just sounds wrong to me. I don't believe any doctor can look at an endo lesion and know whether or not it is causing pain and symptoms. But doctors' first directive is to "do no harm" so if they think that removing it would be worse for you than leaving it there, ethically they have to leave it. It's important to ask a lot of questions before agreeing to surgery to make sure you've found a doctor who has the knowledge, skills, and the confidence to remove it all!

Dr. Nezhat has a lot of experience treating endo patients and I think you're in good hands - I don't think he'll leave any endo behind!!

I agree with you about the Lupron, it's scary how much it is pushed. I saw at least 8 different HMO obgyns and all of them suggested Lupron pre-diagnosis! And I said "no" to all of them, repeatedly in some cases.

Good luck with your lap! You've got a good doctor, which is so important. I hope you won't worry too much! And please let us know how it goes.

At Tue, 1 May 2007, Cari wrote: >
>I am having surgery with Dr. Nezhat this Friday and I went yesterday to
>pull surgical reports for my previous two surgeries with the bozo that
>has been my doc. The first surgery, which to this day he won't discuss
>with me in detail and it was an emergency operation and full laparotomy,
>was to deal with a large adnexal mass. I have no idea what that
>means...anyone had this affliction? :) I do try to remain in my sense of
>humor so...
>
>I am nervous but looking forward to being in good hands with a doc who
>knows a thing or two about endo. My last lap diagnosed my endo but
>removed only part of it which still perplexes me to this day. Why not
>take it all? If anyone can answer, I would LOVE it. Also the alarming
>rate at which docs push Lupron is unnerving considering it is not a long
>term fix and has so many side effects. Due to my inability to use BCP's
>and history of migraines, I have opted out of Lupron as anything messing
>with my hormones scares me to death.
>
>Thanks to anyone who can help or calm me down...I know the surgery and
>what to expect but I am always a nervous wreck before.
>
>--
>Cari
>

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: anonymous: "Re: Hi everyone...some questions"
Previous message: Cari: "Re: Help the crazy girl adnexal mass and endo...? LAURA"
In reply to: Cari: "Help the crazy girl adnexal mass and endo...?"
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