ENDO Messages for April, 2007: Re: My daughter

Re: My daughter

From: D (anonymous@obgyn.net)
Mon Apr 30 20:36:23 2007

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In reply to: Desi: "My daughter"

Sounds like endo, but they may want to do more tests before they do a lap - mainly to rule out other problems, as endo does not show up on reliably on them.

If the gyn thinks it's endo, she'll have to do a lap to know for sure. They may suggest Lupron as a diagnostic, but reaction to Lupron cannot diagnose endo definitively. Hopefully that won't even come up! Just in case, you might want to read this:

http://www.endometriosispaintreatment.com/endometriosis_pain_treatment/Lupron_as_a_diagnostic_technique.htm

If a lap is suggested, there are more questions to ask - like you'll need to know what method the doctor uses to remove the endo. Burning it off is ineffective, and it often grows back when only the tops of the lesions are removed. It's important that the doctor be experienced at recognizing and excising endo from anywhere they find it - otherwise your daughter may be looking at another surgery more sooner than later.

The Endo Research Center has some good free materials available through their yahoo group, including publications on how to talk to your doctor, what to expect from a lap, etc. There's a link to the yahoo group at the bottom of this post and their web site is:

http://www.endocenter.org

I hope this helps!

At Mon, 30 Apr 2007, Desi wrote: >
>My daughter has had awful periods ever since she started them. Our
>gynocologist put her on a low dose birth control and that somewhat took
>care of the problem. Last December she had her appendix removed because
>she was doubled over with awful abdominal pains. In March the pains
>came back and they thought it might be gallstones. We did an ultrasound
>and it showed no stones. Before that they thought it might be ulcers.
>She had none. The pains came back in April, but now they are gone. Does
>anybody think this might be endomitriosis? We have an appointment
>tomorrow, with our gynocologist, but I was wondering if there are
>certain questions I need to ask her.

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: Stephanie: "Really Worried! Blood in stool!"
Previous message: ada: "Re: Pelvic Congestion Fact or Fiction?"
In reply to: Desi: "My daughter"

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