ENDO Messages for April, 2007: Re: getting worse???

Re: getting worse???

From: Michelle (anonymous@obgyn.net)
Mon Apr 30 02:00:31 2007

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Hello,

My first surgery was when I was 18. No one wanted to believe that my cramps were that bad so the surgey was halfhearted. Still she found it and burned some of it off. At 21, I had laparotomy to remove a 12cm endometrioma and two 5cm cysts and adhesions. This doctor did all she could. She excised what she saw. However, she told me she would check my intestines but I didn't have any bowel prep.? Some of the pain improved greatly, but some things didn't change.

At 26, last month, I had my third (and I hope final). The endo was not severe in the areas I expected (no frozen uterus or cul-de-sac adhesions at all) but I had invasive endo on the bowels requiring resections. This explained why I was having more problems with intestinal cramping than bad cramps. This time I saw an endo specialist and once again I had endo removed from all the usual lower pelvic areas, but the intestinal areas were the much more invasive lesions plus some stuff on the bladder area that I never had before.

I am not sure how to answer your question in the end. I think it depends on how long lesions go unnoticed and how well any surgeries were done. I think it takes some time for some of the lesions to develop into the kinds most surgeons recognize. If missed or not removed all the way, they will finally get to the point of causing pain and other problems again. For me, it wasn't so much that it was worse, it was just that the each surgery was different in in its own way.

This is an interesting question as I know many of us have wondered about this. I wonder what others will say.

--
Michelle

At Mon, 30 Apr 2007, Candace wrote:
>
>I understand the feeling.  I'm not sure that mine is getting worse.  It
>will be 3 years since last surgery in December.  (I Had to have 2 in one
>year due to adhesions from bowl to pelvic floor).  I have the same
>symptoms I had before my first surgery.  Including that stupid pulling
>sensation...  I hope that it hasn't progressed too much.
>
>At Sun, 29 Apr 2007, Debbie wrote:
>>
>>Unfortunately it sounds pretty likely, considering that Endo is a
>>progressive disease.  I too have noticed a worsening of my symtoms over
>>the last year, and particularly over the past few months.  I'm having my
>>second lap in 8 days time and fully expect to hear all about the spread.
>>Wish you luck.  Best to get it checked out.
>>
>>At Sun, 29 Apr 2007, anonymous wrote:
>>>
>>>Hi, just wondering what people think...I was diagnosed about 5 years ago
>>>with mild endo.  Seems that the symtoms are much worse than ever the
>>>last year or so.  Going to have a third surgery soon and was wondering
>>>what the chances are that the endo will be more advanced stage this
>>>time, given the time elapsed from last surgery (5 yrs) and the worsening
>>>symptoms?? any ideas?
>>>
>>>thanks :)
>
>--
>Candace
>
>Wishing for pain free days for all!
>

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