Re: Hi..
From: D (anonymous@obgyn.net)
Sun Apr 29 21:43:06 2007
Hello --
I'll add that I agree with the advice to find an endo specialist - a
really good doctor is key to dealing with this disease. Also, I agree
that it's odd they removed an endometrioma, but didn't diagnose endo -
but it is not uncommon, the same thing happened to one of my sisters.
She's lucky that she hasn't had any further problems, but she was also
closer to menopause when she had the endometrioma removed.
One of the big differences between doctors is the method they use to
remove the disease - basically it's either excised (cut out) or it's
burned off. Excision is more thorough, and the results last longer.
Burning is also called cauterization, fulgeration, or ablation -
whatever it's called, there are significant limitations to burning the
lesions. They can't go deep enough, for one thing, for another they
can't remove lesions from sensitive tissues like bladder, bowels, etc.
Here's a page that explains it better:
http://www.endoexcision.com/rationale.asp
The top excision doctors have recurrence rates below 20% five years
after surgery, much better than what medical treatments can offer.
Hope this helps!
At Sun, 29 Apr 2007, M wrote:
>
>Hi
>I agree with Michelle. I think its a little strange that you were not
>given a diagnosis of endo at the time of surgery.
>I had a laparotomy in Jan 07 to remove an 11cm endometriomas and left
>ovary and was diagnosed with endo.
>I was surprised that my doc didn't remove the endo. I was told that it
>was too much and too spread. It kind of irritated me, but I'm guessing
>that she just wasn't able to handle those delicate areas. I also have
>another endometriomas growing back again which makes me wonder iif the
>first was thoroughly removed or if they are just grwing fast.
>I would agree you should def find a specialist for endo. That way you
>are not wasting time and going through surgery after surgery with no
>relief. Hopefully if you can find a specialist you will be able to have
>longer lasting pain relief.
>I know its hard to be in pain and not worry, but I def think that
>stress/worry makes it worse. Hope you find some relief soon.
>Hang in there!
>Melissa
> At Sun, 29 Apr 2007, anonymous wrote:
>>
>>Hi,
>>I am new to this forum. I have been reading through the site and when I
>>found this forum on endo I started reading some of the stories and
>>questions and I feel a little scared about the pain of having endo.
>>I have not been diagnosed with endo but 2 years ago I had an
>>endometrioma removed, and also the tube and ovary was removed on left
>>side. It was large but they were able to remove it with laproscopy.
>>Anyhow the pain never really went away, and so now I have been referred
>>back to my surgeon because my doctor thinks I have endo. I am a bit
>>nervous because I really dread having to go through surgery to try to
>>fix the endo or whatever, only to have the pain never go away. what I
>>am a curious about is the success rates of surgery for endo. Is it
>>really worth it? does the pain ever really go away?
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)