ENDO Messages for April, 2007: Re: New to Endo

Re: New to Endo

From: D (anonymous@obgyn.net)
Sun Apr 29 21:28:05 2007

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Previous message: Stephanie: "Re: Newly Diagnosed...Just Wondering"
In reply to: Nikk: "New to Endo"

I think you should try to get to an endo specialist who will excise the disease thoroughly. Another thing to think about is that it sounds like you have adhesions that may need to be removed, too. Does this doctor do excision, or does he burn the endo off? If he doesn't do excision, there's a greater chance the pain will come back and sooner.

I would want a doctor with more confidence that they can remove all of the disease. Have you asked him what he'll do after the Lupron? The pain comes back for most women when they stop the Lupron and their menstrual cycles return. I hate to think that it would only be putting off a need for still more surgery!

I wish I could give you more advice about the military medical system, I'd like to recommend the Endo Research Center's yahoo group because I know there are women in that group who have been through this with the military and may be able to give you some help in that regard:

http://groups.yahoo.com/group/erc/

Good luck!

At Sat, 28 Apr 2007, Nikk wrote: >
>I am 24 years old and have been trying to convince Army doctors for four
>years that I need a lap to treat endo. The symptoms have greatly
>increased in the last year, but another doctor wanted to evaluate me for
>a long period before "jumping" into the lap. This doctor told me that
>my uterus is now extremely tilted. This has not always been the case. I
>finally got transfered to a doctor off base on Friday and am having the
>lap on 15 May. He said that not only is my uterus tilted, but it is
>completely fixed now (probably due to the endo). He said that it is
>probably stage 4 and mostly in the cul-de-sac. He said that he will try
>to get as much as he can but then put me on 3-6 months of lupron and
>add-back therapy. I have been researching lupron and am not that
>thrilled. Can any one give me any advice or personal experience?
>Thanks!

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: D: "Re: Hi.."
Previous message: Stephanie: "Re: Newly Diagnosed...Just Wondering"
In reply to: Nikk: "New to Endo"

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