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Re: Hi..From: Michelle (anonymous@obgyn.net)Sun Apr 29 12:11:45 2007
Hello, If you had an endometrioma then I am surprised that you were not diagnosed with endometriosis then; I mean I would think that would be a diagnosis. It sounds like they probably didn't look around for endo anywhere else. It sounds like you may still be having pain because it wasn't all addresed. Women with ovarian endometriosis are much more likely to have endo other places. However, sometimes there is so much focus on treating the ovary little attention is paid to anything else at surgery. I had my right ovary removed for large endometriomas with cysts as well through laparotomy and so know it can be scary when you have one ovary left and still have pain. Many of us on this forum struggle with this. Most women have pain relief after surgery, but it all depends on the surgeon's skills. A few specialists believe endo can be cured with great surgery; it all depends on recognizing the various forms of endo (clear, red, yellow and black lesions, etc). Most doctors think it is a chronic disease, where great surgery can give some years of pain relief. After surgery doctors will attempt to control pain with medications (birth control pills and lupron for example). The problem is, is that endo lesions not taken care of can cause more and more scaring and they can infiltrate organs more deeply. They can cause adhesions that cause things like the uterus to stick to the large bowel or even wrap around or grow on the intestines. It is really important that you make sure your surgeon has the needed skills to identify and remove the endometriosis. There are a number of women where the surgeon just looks, sees it, leaves it and doesn't even treat it. Make sure you have a plan with your doctor/surgeon before they go in. Make sure the schedule enough time for surgery and ask how often they perform endo surgery. I was in so much pain before each of my surgeries it was worth it. For my third, I decided I had to see a specialist. I saw Dr. David Redwine (I would go to his website as it gives a lot of good endo information, just type his name.) He believes endo is managed best surgically. I am writing like crazy, but the best I can say is to get some good books and learn all you can. The Endometriosis Association has some great books on their website and (believe it or not) "Endometriosis for Dummies" does a good job of just giving all the facts. I have read alot of endo books and hope to soon post this info on here. Feel free to ask any questions you need on here! Most of us don't want to see other women go through what we did and people provide useful information.
-- Michelle
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