|
Re: Adeno?
From: Eric Daiter, MD (anonymous@obgyn.net)
Sat Apr 28 18:08:56 2007
Sounds like you might consider a 2nd opinion with a different and more
aggressive endometriosis surgeon in your area. Adenomyosis cannot be
diagnosed by looking at the outside of the uterus, although is
characteristically is associated with a large boggy uterus.
Good Luck!
http://www.drericdaitermd.com
At Thu, 26 Apr 2007, D wrote:
>
>Hi Tasha -
>
>It's really impossible to say whether it's the endo or the possible
>adeno, especially since your doctor did not remove your endo and it was
>right behind your uterus. You need to find a doctor with the skills to
>help you, unfortunately your current doctor doesn't have those skills.
>The best chance for relief I know of is to see an endo specialist who
>can excise the endo thoroughly first, and if you are still having a lot
>of midline pain then you might think about a hysterectomy. Some women
>get relief from a presacral neurectomy - during lap surgery they cut the
>nerve from the uterus, with something like 75% of patients with midline
>pain seeing at least some improvement. (sorry I'm not sure about that
>stat, but believe it is close)
>
>Your doctor might want to do an MRI, sometimes adeno can be seen on an
>MRI or ultrasound - but neither of those can give a definitive
>diagnosis. The only way to diagnose adenomyosis is to remove the uterus
>and biopsy it, but then again hysterectomy is also usually the only
>treatment available. It's a poorly understood disease, probably less
>even than endo.
>
>I'm glad the Lupron has helped the pain some, but honestly I'm not a fan
>of the drug. Have you talked to your doctor about what you'll do after
>you discontinue the Lupron? Most people who do get relief find that the
>pain comes back when the suppression wears off and the menstrual cycle
>starts to return.
>
>I hope this helps!
>
>At Thu, 26 Apr 2007, Tasha wrote:
>>
>>I was diagnosed w/ endo on Feb 9th. At that time I had pain that took
>>over my whole abdomen but was always worse on my right side. She did
>>not remove any of it because it was hidden down behind my uterus and she
>>could not get to it. I am only Stage 1 however have quite a bit of pain
>>w/ it. She also told me that my uterus was enlarged and she figures its
>>full of endo.. which makes it adeno(however you spell the whole word).
>>I am high risk for a blood clot so my treatment options are very
>>limited. After doing research on Lupron I did agree to give it a try...
>>so I've had 2 shots. I can not do the add back so I'm dealing w/ some
>>side effects right now and I'm not positive I'll have my 3rd shot. It
>>has however really helped my endo pain which is great. Here is where my
>>question comes in though. Like I said I used to have pain all over my
>>abdomen w/ it worse on the right side. Now after this 2nd Lupron shot I
>>have been having major cramping right in the dead center... more like
>>its my actual uterus. I feel like I have a weight right there trying to
>>push out even after pain meds. Do you think this is the adeno instead
>>of the endo? I need to call my doc next week to discuss the Lupron thing
>>but I want a better idea of what is going on cause before we didn't
>>think the adeno was effecting me that much.
>>
>>Thanks for your help!
>>Tasha
>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
--
http://www.infertilitytutorials.com
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)