Re: YES! YES! YES! Back and Leg pain with period~me too!
From: Elisa (anonymous@obgyn.net)
Sat Apr 28 09:43:05 2007
Hi Tracey & Ladies~
Yes...that pain is the worst. Tracey said the magic words. The endo on
the ureters hurts like $%^#$#!!! :) It's not in your heads, I promise! I
think it's great your Dr. told you this and didn't try to do more
urologically then they can handle. I have had good luck with Endo
Specialists who work with Urologists and Colo-rectal Dr.'s who
specializes with endo as well. Together they can make a plan and
dissect that endo off since it's a delicate area.
You will notice the difference that much is true. With cycles it seems
to swell up and those areas get really constricted as they are cycling
too. UTI's auh...yes...all the time during these bouts. Then the colon
get's involved too with the medicines and the endo and you have two
things going on at the same time. This was just me, but finally I had
to cease those cycles after my surgery with consecutive BCP's because
Lupron and Synarel was not an avenue I was willing to do again. They
did help in the beginning to shrink those areas for surgery but that is
as far as I was willing to go again in this lifetime. The ureter used
to get so bad because that endo was like cement by time they got in
there that I would end up getting ureteral stents placed every 6 weeks
just to keep it open because that pain from the bladder to the kidney
was the worst. Your pain is VERY REAL. I am sorry you are going
through this.
I hope this helps some. I know we are all different but I am happy they
did give you this piece of information because it can help in moving you
forward and relieving that pain down a bit. I am not sure about
re-growth because we are all different. My did grow back but it took 8
years so that's not bad considering and I did it with a laparotomy. The
first time I did it was via scope and it grew back withiin 4 years. That
ureter is so delicate so I would (again this is just me :) use the
surgery to your best advantage and only once if you can in those areas.
Hang in there. If the pain get's unbearable take your surgical report
with you to your Dr. (if you saw a different one) and or the ER until
you get to a new Endo Specialist who works closley with these areas.
Wishing you all good luck! Hang in there!!
Thinking of you...
--
Elisa
At Sat, 28 Apr 2007, Stephanie wrote:
>
>Hello ladies,GEEZE i also have that pain in both of my legs! The pain is
>so bad, specially on ovulation and period that my legs get NUMB up to my
>knees!! I take darvocet, but not even that helps sometimes. And my back
>is the same, i feel that im in labor sometimes, thats how bad my back
>aches!! Good Luck to everyone!! Steph :)
>
>At Fri, 27 Apr 2007, Mollie wrote:
>>
>>Oh God Yes! That is a major issue and being a kindergarten teacher and
>>not being able to sit down and take a break during the day is horrible!
>>My right ovary has a cyst. It pulsates and has sharp stabbing pains. It
>>wraps around my right hip into my lower back and shoots down my right
>>leg into my inside right ankle (reflexology point for female
>>organs-imagine that!) and into the arch of my right foot. Never the
>>left side, always the right. I totally understand you girls! It sucks
>>and b/c of the pain I have not exercised in forever. I take my dog on
>>daily walks but lately the pain has been too horrible. I feel terrible
>>like I am neglecting her but man is it a killer! I don't see how woman
>>with this kind of pain take care of children. I took 2 Darvocet and a
>>hot bath the other night and it offered NO relief! It is terrible!!!!!!!
>>
>>At Sat, 30 Sep 2006, Tracey wrote:
>>>
>>>At Fri, 29 Sep 2006, holly wrote:
>>>>
>>>>i had pain in my legs and back, and when i had my 3rd lap, endo was
>>>>found on overlying one of my ureters. they said there are a lot of
>>>>nerves and blood vessels in that area that go to the legs. i also had a
>>>>uterine infection, and it caused pain in my hip joints and all up my
>>>>back until i got it treated.
>>>>
>>>>talk to your dr.
>>>>
>>>>~holly
>>>>mild endo
>>>>
>>>>At Fri, 29 Sep 2006, Kinya wrote:
>>>>>
>>>>>Okay ladies I have had lots of period problems but this one is making me
>>>>>nervous. I started a couple of days ago and had the usaul pain but
>>>>>yesterday I started having really bad back pain right in the middle and
>>>>>now my legs are hurting so bad. My right leg has pain just shooting
>>>>>down it. Any help or advice would be great! Hope you have a pain free
>>>>>day and a restful mind!
>>>>>
>>>>>--
>>>>>Kinya
>>>>>
>>>--
>>> Hi everyone~
>>> I have alot of pain in my back and into my legs!! its one of my worse
>>> symptoms~ My legs just ache like a toothache!
>>> I assume its from the endo,..... but after reading Hollys response I'm quite sure it is.
>>> I also have endo lying over a ureter which was left behind during my last Lap.
>>> Dr. said its too delicate of an area to remove without a specialist involved.
>>> I have some left on my colon too,..for the same reasons.
>>> I'm glad to know that others experience the leg pain.
>>> kinda eases my mind~
>>> There are somedays when the pain makes it hard to walk much.
>>> I get kidney area or ovary pain on my one side too.
>>> This illness is complex for sure.
>>> Take care ladies
>>> Tracey
>>>
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