ENDO Messages for April, 2007: Re: Adeno?

Re: Adeno?

From: D (anonymous@obgyn.net)
Thu Apr 26 21:06:21 2007

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In reply to: Tasha: "Adeno?"
Next in thread: Eric Daiter, MD: "Re: Adeno?"
Reply: Eric Daiter, MD: "Re: Adeno?"

Hi Tasha -

It's really impossible to say whether it's the endo or the possible adeno, especially since your doctor did not remove your endo and it was right behind your uterus. You need to find a doctor with the skills to help you, unfortunately your current doctor doesn't have those skills. The best chance for relief I know of is to see an endo specialist who can excise the endo thoroughly first, and if you are still having a lot of midline pain then you might think about a hysterectomy. Some women get relief from a presacral neurectomy - during lap surgery they cut the nerve from the uterus, with something like 75% of patients with midline pain seeing at least some improvement. (sorry I'm not sure about that stat, but believe it is close)

Your doctor might want to do an MRI, sometimes adeno can be seen on an MRI or ultrasound - but neither of those can give a definitive diagnosis. The only way to diagnose adenomyosis is to remove the uterus and biopsy it, but then again hysterectomy is also usually the only treatment available. It's a poorly understood disease, probably less even than endo.

I'm glad the Lupron has helped the pain some, but honestly I'm not a fan of the drug. Have you talked to your doctor about what you'll do after you discontinue the Lupron? Most people who do get relief find that the pain comes back when the suppression wears off and the menstrual cycle starts to return.

I hope this helps!

At Thu, 26 Apr 2007, Tasha wrote: >
>I was diagnosed w/ endo on Feb 9th. At that time I had pain that took
>over my whole abdomen but was always worse on my right side. She did
>not remove any of it because it was hidden down behind my uterus and she
>could not get to it. I am only Stage 1 however have quite a bit of pain
>w/ it. She also told me that my uterus was enlarged and she figures its
>full of endo.. which makes it adeno(however you spell the whole word).
>I am high risk for a blood clot so my treatment options are very
>limited. After doing research on Lupron I did agree to give it a try...
>so I've had 2 shots. I can not do the add back so I'm dealing w/ some
>side effects right now and I'm not positive I'll have my 3rd shot. It
>has however really helped my endo pain which is great. Here is where my
>question comes in though. Like I said I used to have pain all over my
>abdomen w/ it worse on the right side. Now after this 2nd Lupron shot I
>have been having major cramping right in the dead center... more like
>its my actual uterus. I feel like I have a weight right there trying to
>push out even after pain meds. Do you think this is the adeno instead
>of the endo? I need to call my doc next week to discuss the Lupron thing
>but I want a better idea of what is going on cause before we didn't
>think the adeno was effecting me that much.
>
>Thanks for your help!
>Tasha

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: M: "Re: Wonderful news for the first time in my life!"
Previous message: D: "Re: Wonderful news for the first time in my life! MESSAGE FOR KRIS/PENNYDOLL!!"
In reply to: Tasha: "Adeno?"
Next in thread: Eric Daiter, MD: "Re: Adeno?"
Reply: Eric Daiter, MD: "Re: Adeno?"

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