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Re: 19 with Endo.. How fast can it come back?
From: Jess (anonymous@obgyn.net)
Tue Apr 24 16:48:57 2007
Hey Kari,
I understand what you're going through and I'm feeling your pain. I'm
21 and my first of 2 laproscopies was in 2005. I am still having so
much trouble with it and trying everything i can to kick it in the ass.
So first of all, your symptoms are definitely common. Before I know I
had endo, BM's were close to the worst part. I don't want to try to
tell you what to do but here is my advice and the paths i have taken and
you can take it for what its worth. :) I hope it helps!! Most of the
pain we experience from endo is because of inflammation and bloating. At
the most simple level, definitely think about changing your diet. for
starters, try to keep a really healthy diet and eat lean. I've found
that a lot of veggies or other foods that may give you gas should
definitely be avoided! Also if you aviod wheat and dairy products and
anything that will cause your body to bloat---yeah I know its hard---I
found it helps so much. I had read about it then finally tried it and
it really does help with the pain and also with the BM's. It is really
hard to do but its totally worth it if it reduces the pain. Also, when
you eat, try taking ibuprofen or something like it. anti inflammatories
with meals seems miniscule, but it helps! I know you said that the docs
are trying to get you on something that will stop your periods...I was
on depot lupron for 6 mos--it is basically like drug induced menopause.
The side effects are what you would think menopause is like, but I
didn't have pain from the endo, so you have to weigh the pros and cons
personnally. Think about trying it out, you might be surprised. I'm
going back on it next week because my symptoms come back bad after like
4 weeks of being off it. Talk to your doctor about the different
kinds--they're called 'progestins'.
I'm sorry you're feeling down, just know that you're not alone. I know
it sounds lame but seriously. Try to be positive and have a positive
outlook on the whole thing. It is shitty, and its unfair that you've
been through so much. But it will help you mentally and physically to
just totally commit yourself to helping yourself feel better. Do
everything you can and when you do go to the dr, if you have ANY
questions, even if they seem irrelevant, ask them. The more you know
about whats going on, the easier it will be for you to handle and to
fight it.
Good luck hon
J
At Tue, 24 Apr 2007, SnowAngel1988 wrote:
>
>Hello Everyone,
>
>I am new to the forums. I just turned 19 and have been diagnosed with
>Endometriosis and Cervical Dysplasia. I had a Laparoscopy in February.
>Two days after surgery I had a Spinal Tap, a week after surgery I had a
>Colposcopy.
>
>The first period after surgery was a little more painful a little
>heavier, but that is to be expected. The second period... I was in so
>much pain I couldn't stand up for fear of passing out. I recently moved
>out of state. I called my doctor from back home and he said the amount
>of pain was not normal and I needed to get into a doctor asap.
>
>Two weeks later here I am. I finally got the nerve to make the
>appointment and it was yesterday. They are telling me that it's the
>Endo acting up again and they're currently trying to stop my periods.
>They're trying to get me on a birth control that will stop my periods,
>help ease the pain. My pap was very painful but they, I think, shrugged
>it off as uterin tenderness because I am to get my period next week.
>
>I guess... i've been sick with many things, first it was hypoglycemia,
>then it was anorexia and depression then it was Chronic Daily Migraines
>for 3 years. I have lived when no one expected me to, I graduated high
>school when no one thought or believed I really could. My one dream in
>life was to have a child of my own. I am 19 and receiving news that I
>may never be able to have the bond of pregnancy, I may never be able to
>have a child naturally. I am also receiving news that I may develop
>cancer because of the precancerous cells, that the Endo may already be
>coming back...
>
>I have no idea how to deal with this right now. Honestly, I don't want
>to be in pain for the rest of my life, doctors told me that when I had
>my migraines. The pain gets so bad that I can't even stand up
>sometimes. I'm also having abdominal pain before bowel movements now,
>and i've never had that like this before... it's not hemeroids. This
>is like a knife in my pelvic region/abdomen an hour or sooner before I
>have a BM.
>
>Can Endometriosis come back this quickly? What do I need to be asking my
>doctor about this stuff? All I know is the pain that i'm in and I know
>that I'm not sure how to deal with this. I am honestly scared to death.
>I've gone through a lot in my life but I was not expecting something
>that no one can cure, and I sure wasn't expecting to hear that it's
>acting up again... so soon????
>
>Has anyone had experiences like this? What should I be asking my doctor?
>Are there books or websites out there that can help me better understand
>this? What are my chances after all this of having children?
>
>Any advice would be greatly appreciated.
>
>~*Kari*~
>
>--
>"It's not about age... it's about life."
>-Davy Jones
>
>"Scary to cope
> To have to deal.
> But sometimes it works out
> Gets real.
> Don't quit just before the miracle."
>-Peter Tork
>
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