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Re: Newbie here, complete hysterctomy and now same ole pain back again

From: D (anonymous@obgyn.net)
Sun Apr 15 17:42:51 2007


You don't sound crazy at all to me - endo that isn't removed can cause problems even after the uterus and/or ovaries are gone. It's actually a good thing that your gastro is aware of this - most are not, and their support may help you get to a specialist faster!

You should find a good endo specialist who has dealt with post-hysterectomy endo because the surgery can be more complicated thanks to adhesions and scar tissue. Also, most obgyns aren't going to be comfortable removing endo from the bowels - make sure your doctor can deal with that. There's a link at the bottom of this meassage to the endodocs yahoo group - it's a good place to look for an endo doctor.

Here's a link about endo recurring after hysterectomy: http://www.endometriosistreatment.org/html/reprint7.html

At Sun, 15 Apr 2007, Tammy wrote: >
>HI everyone,
>
>Please if you can help me to answer some of my questions. When I was 28
>I had a hyst. removed uterus due to pain from endo. Low and behold 6
>years later pain again had ovaries removed. Thought I was free and
>clear. Well now I have extreme pain in the belly button area and around
>(sides of stomach back etc) Went to my primary who sent me to ER thought
>appendix not, then to a Gastro who wants to do a colonoscopy in get this
>3 months but the gastro mentioned possible endo recurring attaching to
>bowel???? Of course I was stunned but I do have all the same symptoms as
>before, pain, painful sex and swelling feeling "puffy" that was always a
>endo sign for me. Does anyone elses ever swell & feel puffy? So I
>called my gyn I have an appt. May 4th but has anyone else had this
>happen? To reoccur? What else can this crap attach to. I work full time
>and do okay in the morinings but as the afternoon wears on I am in pain
>again and usually when I come home I am laying in bed, I do not like to
>take anything for pain when I have to go to work the next day. When it
>first started again it was occasional lasted a few days then got better
>but I am now in constant pain severe in evening and night when it seems
>to get worse. I know alot of people probably think I am just plain
>crazy. Please if you can offer any advice & or answers to any questions
>I would really appreciate it Thanks

--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/






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