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Re: Just Curious? ~ Do you have any family members who share in this disease too? ~
From: Alyson (anonymous@obgyn.net)
Tue Apr 10 14:19:46 2007
Elissa
I too always had a weak immune system as a child and continue to as an
adult. I did not start my period until 17 and wasn't diagnosed with
endo until 27. My sister is 10 years younger and is suspected to have
endo. She has not gone as far as the diagnostic surgery yet as the
bcp's seem to be keeping symptoms in check for now. Interestingly I am
convinced my mother had endo. She was unable to conceive for almost 8
years, had horrible periods. At 28 she was rushed to surgery with an
orange sized cyst on one ovary and several cysts on the other. This was
in the 70's before they had ultra sound and before endometriosis was
even talked about. They actually thought she had cancer. They took one
ovary and half of the other and described the masses as blood cysts. She
became pregnant with me not long after the surgery. She continued to
have awful periods and alot of pain right up to menopause. Obviously it
is hard to say one way or the other now, but I really think she did have
endo.
Her sister also had a hysterectomy for adenomyosis.
Alyson
At Tue, 10 Apr 2007, Elisa wrote:
>
>Hi Melissa~
>
>Thanks for getting back to me on this :) I bet you are so right. I was
>a sickly child up to 12. Then I got my menses and oddly enough had
>renewed strength and energy. I did cheerleading and volleyball all
>through high school and felt my best. Once I hit 19 my system crashed
>so bad with extremely bad period pain that I had to get B12 shots for
>energy as well. I finally got diagnosed with endo by 25 but already had
>my first cyst rupture by time I was 20. In our family everyone (child
>wise) is hypothyroid and I was the opposite with hyperthyroidism. I
>would be very interesting to see how all this links into the pituatory
>glands and more. I always had myself tested through the years and now
>came out Euthyroid. These bodies go through a lot don't they.
>
>I hope your having a great day too!
>
>--
>Elisa
>
>At Tue, 10 Apr 2007, M wrote:
>>
>>Hi Elisa
>>I have actually had sev people ask me that question. There is no women
>>in my family that have had or have endo. So for me I'm wondering if
>>there is something too that whole immune system theory. As a child and
>>even now my immune system seems to be weaker than most peoples. I tend
>>to get sick easy and I have asthma and am anemic. Its hard with endo
>>because I can't tell what problems/pain are coming from that and which
>>aren't related.
>>Hope you are having a good day!
>>Melissa
>> At Tue, 10 Apr 2007, Elisa wrote:
>>>
>>>Hi Everyone~
>>>
>>>I had a question I have been meaning to ask. Do you have any other
>>>family members who share in the same type of disease, signs and symptoms
>>>as you?
>>>
>>>I know somewhere I heard that there could be hereditary factors and in
>>>our family my sister who is ten years younger than me has this as well
>>>as all the first cousin girls on both sides of my family.
>>>
>>>Just thought I would see what other families share this common subject.
>>>
>>>Have a good week!
>>>
>>>--
>>>Elisa
>>>
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