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Re: Alot of questions and no answers...From: amanda (anonymous@obgyn.net)Fri Apr 6 21:14:53 2007
At Tue, 3 Apr 2007, D wrote: > >Hi Tasha - > >I'm sorry you are having a difficult time. What you describe could be >endo - a lot of it sounds familiar to me and probably others here, too. >A lot of women with endo have similar experiences, going through a lot >of GI and other tests that often don't turn up anything. It's still >good that you had all the tests because they ruled out a lot of other >stuff. To diagnose endo you need to have surgery, called a laparoscopy, >during which your doctor should remove (excise) any disease they find >and take tissue biopsies. A pathologist examines the biopsies and makes >the final diagnosis. > >Endo is not very well understood, and finding a good doctor to treat you >can be difficult - a lot of women travel to have surgery with one of the >handful of endo specialists in the country. Learning as much as you can >about the disease is very important - many women find that they quickly >know more than their obgyn! (which is a sign to find a new doctor) > >Many women who have endo have serious chronic pain - if you are in pain >and your doctors aren't helping you with it you may want to ask for a >referral to pain management. I'm in pain management, waiting until I >can have surgery with a specialist, and my pain doctor has made a huge >difference. There are some posts on this list over the past few weeks >that explain more if you browse back through them or search the forum >for "pain management". > >There are also a couple links at the bottom of this message to yahoo >groups I've found very helpful - the endodocs group is a good place to >look for a specialist or an obgyn, and the ERC support group has a lot >of very knowledgeable and helpful members. Both groups have archives >you can search or browse. > >Good luck, and please don't hesitate to ask questions. Dealing with >endo (or chronic pain of any kind) can be terribly frustrating and >you'll find a lot of women in these groups who can relate to your >problems and hopefully help you find answers. > >At Tue, 3 Apr 2007, Believe wrote: >> >>My name is Tasha, and I just came across this site while trying to look >>up some things about endo. About a yr after I first started having my >>period I started experiencing really really bad cramps. So bad that no >>medication would take the pain away. I would lay down and huddle up in >>a ball and just cry. It was all I could do. No matter how many heating >>pads, hot baths, lying on my back with feet in the air, pain meds, I >>took or did the pain would not let up. I dreaded my period every month! >>About my 4th year into my period the pain let up incredibly and I didnt >>have that bad of pain again for about 1 1/2 yrs. Its starting to come >>back now about every other period. I recently got a yeast infection. Or >>so I think it was because it itched really bad and I was discharging >>alot. I took some over the counter medication and ate garlic for about >>a week. The itching went away. My last 6 periods have been so >>irregular that I keep taking pregnancy tests to make sure Im not >>pregnant. My last period lasted for only three days and then two days >>later I started spotting for about 4 days. My periods have always been >>irregular in one form or another. A few months ago I would get really >>bad abdominal pain everytime before and during my period for about 3 >>periods. I went to the ER prly 4 or 5 times. The first time I went >>they found nothing. The second time I went they told me I had a cyst on >>my ovary after doing a pelvic exam. The third time I went they did a >>cat scan and found nothing. The fourth time they did a blood test and >>another xray and said I didnt have a cyst on my ovary and they must of >>diagnosed me wrong the second visit!! The fifth time they pretty much >>just gave me more vicodin and sent me home. I ended up finally making >>an appt with my doctor because not only was the pain not going away and >>my stomach had bloated to where it was firm and I looked pregnant. The >>doctor imediately set me up for a lower abdominal ultrasound. Found >>nothing. Then set me up for an upper abdominal ultrasound. Found >>nothing. Did a lower and upper G.I. Series. Found nothing. Did a >>lower bowel series. Found nothing. I finally gave up on all the tests >>that were doing nothing for me. Since then Ive only had the pain in my >>abdominal once and not as bad as before. Now my periods continue to be >>irregular and every once in awhile very painful.... Can someone answer >>anything for me? I would really apppreciate your thoughts. > >-- >Find an endo specialist in the ERC's EndoDocs group: >http://groups.yahoo.com/group/EndoDocs/ > >Try an excellent endo support group: >http://groups.yahoo.com/group/erc/ >
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