ENDO Messages for March, 2007: Re: stuck between a rock and a hard place..help!!

Re: stuck between a rock and a hard place..help!!

From: Elisa (anonymous@obgyn.net)
Sat Mar 31 09:07:39 2007

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In reply to: Victoria: "stuck between a rock and a hard place..help!!"

Hi Victoria~

I am so sorry that your endo has reared it's ugly head again. It's more than overdue time wise for this though. Your at a VERY critical place especially since the Dr. you have hasn't been staging you through this. Maybe this is the best they can do, but you still have a few options left before hysterectomy.

I would get to an Endo Specialist Pronto. You sound like your bound down (though it's hard to tell without someone getting in there). You want a good Dr. who will try to preserve what you have and dissect at this point, not laser those areas away. Then they can work with you on a method that works best for you and your body to keep the cycles ceased until your ready down the road. Sometimes it can warrant a hysterectomy when they go in but it's always supposed to be the last resort. Hysterectomy does not cure this, but ceases the cycles. The specialist can work to dissect those areas around the colen/bowel and have a urologist or colorectal Dr. working with them at the same time to get those even more complex areas. They can start viewing with the scope and convert right to a laparotomy if needed during that time. You deserve a chance to have this looked at the right way. It's OK if that's the best your Dr. can do, but it's not the last option for you.

Please go to someone new. :) I know your probably tired and I don't blame you but this is to critical to let someone just take an easy way out before you really have a chance to have this looked at by a specialist. If you need help finding one I am more than happy to help anyway I can. OK?

Hang in there and let me know if I can help you out any other ways.

Thinking of you...

-- Elisa

At Sat, 31 Mar 2007, Victoria wrote: > >Hello: > >I was diagnosed with Endo in January, 1998. I had SEVERE pain in >November and December of 1997--would break out in a cold sweat, feel >faint, things would go black..and then pain in which I never thought >could be so severe would overcome my abdomin. Had a 6-millimeter cyst >on right ovary, 3-millimeter cyst on left ovary. Had a laproscope >performed in March of 1998--required the removal of my right fallopian >tube and ovary due to scar tissue, fibroids, tumors, cysts, lesions, >etc. The cyst on my left ovary went away, amazingly. > >My dillema is...my endo came back in November of 2005. I have had no >real severe/chronic pain per se...my pain is "normal" for me (I think) >and I say this because I don't know what is "normal" pain and what >should be a cause of concern. I suffer from fatigue, constipation, and >lower back pain almost every day. My doctor told me that I am to call >him to schedule the hysterectomy in which he says I might have to have >done in the future. Ok---this causes great concern. I asked him is >there any real way to determine the severity of my endo? He said no. I >can't fathom this. My sister-in-law recently asked me if I know of the >"levels of endo" that are out there. Ahh..no I didn't. There are 4 >levels..and the higher you go..the more of a risk of cancer??? Why isn't >this told to me? Why is it that I get the impression someone is >withholding information that I NEED?? If I need a hysterectomy--TELL ME >that I need one. Don't tell me to call you when I'M ready. > >Is anyone going through this now??? I would like to know...because i'm >stuck. I was told by my doctor the longer I wait to have this surgery, >the more difficult the surgery will be. I'm stuck! That's all there is >to it. What to do? > >Sincerely, >Victoria

Next message: D: "Re: Hysterectomies do not cure endo.--Question for 'D'"
Previous message: anonymous: "Re: stuck between a rock and a hard place..help!!"
In reply to: Victoria: "stuck between a rock and a hard place..help!!"

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