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Re: stuck between a rock and a hard place..help!!
From: anonymous (anonymous@obgyn.net)
Sat Mar 31 08:20:44 2007
Hey Victoria,
I was just diagnosed with endo in Jan 07. I feel like I'm in kind of a
similar situation,though not facing a hysterectomy. I love my OB but
have been very frustrated, I have an appt to get a seond opinion in afew
wks, but I'm not sure if she can help because she is not an endo
specialist either.
I would just recommend getting a second opinion and listenm to your gut.
Doctors should be truthful and forthright with our info.
I hope you are able to find answers/relief.
At Sat, 31 Mar 2007, Victoria wrote:
>
>Hello:
>
>I was diagnosed with Endo in January, 1998. I had SEVERE pain in
>November and December of 1997--would break out in a cold sweat, feel
>faint, things would go black..and then pain in which I never thought
>could be so severe would overcome my abdomin. Had a 6-millimeter cyst
>on right ovary, 3-millimeter cyst on left ovary. Had a laproscope
>performed in March of 1998--required the removal of my right fallopian
>tube and ovary due to scar tissue, fibroids, tumors, cysts, lesions,
>etc. The cyst on my left ovary went away, amazingly.
>
>My dillema is...my endo came back in November of 2005. I have had no
>real severe/chronic pain per se...my pain is "normal" for me (I think)
>and I say this because I don't know what is "normal" pain and what
>should be a cause of concern. I suffer from fatigue, constipation, and
>lower back pain almost every day. My doctor told me that I am to call
>him to schedule the hysterectomy in which he says I might have to have
>done in the future. Ok---this causes great concern. I asked him is
>there any real way to determine the severity of my endo? He said no. I
>can't fathom this. My sister-in-law recently asked me if I know of the
>"levels of endo" that are out there. Ahh..no I didn't. There are 4
>levels..and the higher you go..the more of a risk of cancer??? Why isn't
>this told to me? Why is it that I get the impression someone is
>withholding information that I NEED?? If I need a hysterectomy--TELL ME
>that I need one. Don't tell me to call you when I'M ready.
>
>Is anyone going through this now??? I would like to know...because i'm
>stuck. I was told by my doctor the longer I wait to have this surgery,
>the more difficult the surgery will be. I'm stuck! That's all there is
>to it. What to do?
>
>Sincerely,
>Victoria
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