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stuck between a rock and a hard place..help!!

From: Victoria (anonymous@obgyn.net)
Sat Mar 31 05:56:55 2007


Hello:

I was diagnosed with Endo in January, 1998. I had SEVERE pain in November and December of 1997--would break out in a cold sweat, feel faint, things would go black..and then pain in which I never thought could be so severe would overcome my abdomin. Had a 6-millimeter cyst on right ovary, 3-millimeter cyst on left ovary. Had a laproscope performed in March of 1998--required the removal of my right fallopian tube and ovary due to scar tissue, fibroids, tumors, cysts, lesions, etc. The cyst on my left ovary went away, amazingly.

My dillema is...my endo came back in November of 2005. I have had no real severe/chronic pain per se...my pain is "normal" for me (I think) and I say this because I don't know what is "normal" pain and what should be a cause of concern. I suffer from fatigue, constipation, and lower back pain almost every day. My doctor told me that I am to call him to schedule the hysterectomy in which he says I might have to have done in the future. Ok---this causes great concern. I asked him is there any real way to determine the severity of my endo? He said no. I can't fathom this. My sister-in-law recently asked me if I know of the "levels of endo" that are out there. Ahh..no I didn't. There are 4 levels..and the higher you go..the more of a risk of cancer??? Why isn't this told to me? Why is it that I get the impression someone is withholding information that I NEED?? If I need a hysterectomy--TELL ME that I need one. Don't tell me to call you when I'M ready.

Is anyone going through this now??? I would like to know...because i'm stuck. I was told by my doctor the longer I wait to have this surgery, the more difficult the surgery will be. I'm stuck! That's all there is to it. What to do?

Sincerely, Victoria






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