ENDO Messages for March, 2007: Re: I need HELP please!!! Suffering so badly from Lupron-I'm at the end of my rope!

Re: I need HELP please!!! Suffering so badly from Lupron-I'm at the end of my rope!

From: D (anonymous@obgyn.net)
Fri Mar 30 19:57:28 2007

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In reply to: Kelly: "I need HELP please!!! Suffering so badly from Lupron-I'm at the end of my rope!"

Hi Kelly -

I'm sorry you're are going through this, it sounds awful. I've never taken Lupron - I read too many bad things, and auto-immune problems run in my family so the chance that Lupron would trigger bad side effects in me is just too scary. Here's a link to the "Lupron Victims" yahoo group, where you can find others who have been through or are going through similar things due to the drug - you are not alone: http://health.groups.yahoo.com/group/LupronVictims/

Your doctor should give you a referral to pain management, if you look back over the past few days there have been some posts explaining more about how it works, finding a pain doc, etc. Endo pain is often undertreated, and it shouldn't be that way - a good doctor will help you get your pain under control. Keeping a pain diary can help get doctors to understand how much the pain is interfering with your life. I found that keeping track of my pain and symptoms has been very helpful - when a doctor can read that your pain was an 8 out of 10 for twenty of the last thirty days it means a lot more to them than saying "it hurt so bad for most of last month that I couldn't work and just wanted to lie in bed with my heating pad"!

I wish I had some more immediate advice, but I don't know what to say except don't take another shot! But you've already made that decision. Long-term your best bet is to find an endo specialist to remove the disease by laparoscopic excision. Until then, I hope you can get referred to a pain management doctor and get some relief that way. It will get better! And if you need to, go to the ER. It probably is all due to the Lupron, and they'll probably give you some drugs and send you home again, but afterwards you can go back to your doctor for follow-up - and a referral to a pain doctor. There's also the outside chance that there's something else going on so it's good just to get checked out.

Good luck!

>Hi I'm Kelly. I've posted some messages with little response. Hope
>this will be different. I got my second shot a little over a week ago
>and I have never suffered so badly in my life. The endo pain (which was
>terrible) is not looking so bad compared to this. I have basically
>lived in bed for a week and I'm not getting better. My blood pressure
>has gone through the roof, I feel like I could faint at any moment, my
>whole body hurts so bad. I have lower back pain, can't sleep, and had
>such a bad day today I wanted to go to sleep and not wake up. I feel so
>depressed and my head aches. I feel all alone. I saw a new OB this
>week and will not take another injection. I was also diagnosed with
>IBS, which explains my continuing abdominal pain. Has anyone else had
>these terrible side effects from Lupron? If so, what did you do for
>them? I have Ultram and Clinoril, which do not help. My PCP gave me a
>few Vicodin but they only help a little. I wanted to bring up my pain
>to my new OB, but seeing all these different doctors have me so nervous.
>They do not like to give out pain meds. I can't stop crying, I don't
>know what to do. I am starting to think about going to the ER, but the
>last time I went (first week after starting Lupron) all they did was
>give me a pain shot and sent me on my way. This is taking such a toll
>on me and I feel so fed up. Any help, advice, similar experiences would
>be so much appreciated.
>
>Thanks, Kelly

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: EndoAwareness: "New Endo Forum Site!!"
Previous message: princess: "Re: Anybody understand?"
In reply to: Kelly: "I need HELP please!!! Suffering so badly from Lupron-I'm at the end of my rope!"

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