ENDO Messages for March, 2007: Re: How do I know?

Re: How do I know?

From: D (anonymous@obgyn.net)
Fri Mar 30 09:38:34 2007

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When to get surgery is a decision you can only make for yourself, with the help of your doctors. It's partly up to you and what you want and need - only you know how much pain you are in, and how much the pain and other possible problems like infertility are interfering with your life. And it's partly up to your doctors - what do they advise? What are they capable of - are they really going to be able to help you? Do they have the skills to find and excise all of the disease? I don't think anyone should have surgery with a doctor they don't trust, and it's up to the patient to educate themselves and find a doctor they trust.

Something else to consider is that endo doesn't usually get better on its own. Maybe after menopause, but that doesn't even help everyone. Birth control pills and other hormonal suppression may help, and certainly many of us are more comfortable not having our periods, but these methods wear off eventually.

Endo is identified by your doctor at surgery (and should be removed at that time), but it's truly diagnosed by the pathologist who examines the biopsies the doctor takes. That's one reason to have surgery with a specialist, because they work with pathologists who are likewise experienced at identifying endo. Specialists are also less likely to miss very small or atypical lesions because they see more of them.

Hope this helps.

At Fri, 30 Mar 2007, anonymous@obgyn.net wrote: >
>I sympathize- I am in the same situaiton; and I just want to add a
>question to your inquiry--- How do we know when to get laproscopic
>surgery?
>
>At Fri, 30 Mar 2007, Lynn wrote:
>>
>>Honestly, No. The only thing that will be visable on ultrasound or on
>>MRI would be an endometroma on an ovary but as far as endometrial
>>implants outside of the uterus a doctor would need to do a laporscopic
>>surgery - however, there can also be invisable endo that the doctor can
>>not see as well (this happened to me in my fist surgery).
>>
>>At Fri, 30 Mar 2007, LondonRose14 wrote:
>>>
>>>Hi everyone,
>>>This is my first time here, and I am very happy to have this site
>>>available. So here goes : I am a 22 year old who has been experiencing
>>>pelvic pain since I was 13. The pain has been severe enough to rate a
>>>ten on the pain scale, though it's usually a nine. I have seen a few
>>>specialists, but I have to travel pretty far to see them. I was 17
>>>before a doctor back home told me about endometriosis. What I want to
>>>know is this: Is there any way to know for sure if I have endo without
>>>having the surgery?
>>>
>>>LR

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Next message: Stephanie: "Re: Nervous!!"
Previous message: D: "Re: dr. alan johns in fort worth - rating dr.s"
In reply to: anonymous@obgyn.net: "Re: How do I know?"
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