Re: Need Help.......Looks like hyst time.... :-(
From: Elisa (anonymous@obgyn.net)
Thu Mar 29 08:25:31 2007
Hi Kris~
I know this has to be sooooo hard for everyone. Let's separate all the
mess from the reality here with you OK? You are miserable, and I am sure
your family and friends (as much as they don't understand it's not this
simple) want to see you make a decision and I swear sometimes we push
ourselves for them because they get so frustrated at us thinking "why
isn't this procedure working".
I guess the only advice I can offer up to you is to think about what
type of insurance do you have? Do you have the freedom as of today to
get to a good Endo Specialist even if it's out of state? I ask this
because if something major changes in your life getting the insurance or
the Dr. later on is going to be VERY hard and it will be out of
desperation then.
I have been in pain mgt. for a year this April and I promise you it
will be there when your done. It helps us get by vs nothing, but to me
(again this is just me) doing that alone is not nearly enough if you are
suffering so bad. Your not going to be able to help anyone if you can't
get better right? I would take this surgery now with a good surgeon and
get this under control. Try to find a way to cease those menses (I am
not condoning Lupron) You make the best choice for you :) and keep the
endo at bay as much as humanly possible.
You can follow up with the pain clinic afterward as a maint. program if
you pain is still high. Some people are fine after surgery for 6 months
to a year or even longer and use the pain clinic after that as needed
because their last surgery date was not that far off. I hope this helps
for you. Think of you first. This can spin out of control if we try to
control it all (and rightly so, because it's our bodies). I bet your
hubby was upset because you have waited for a surgical answer that can
give you some visual insight and I am just speculating but it probably
felt to him like yet another delay. My husband has been with me
battling this for 16 years and he still gets that eye rolling look on
his face when he sees me start going down hill.
Hang in there! Make a good decision and allow yourself the time to heal
and go for it! People will pitch in. It may not seem like it but they
will have no choice. I am here if you need someone to talk too.
Thinking of you...
--
Elisa
At Thu, 29 Mar 2007, PennyDoll wrote:
>
>I dunno, went to the endocrinologist yesterday. Wasn't quite what I
>expected. Pretty much since I've done every treatment out there and
>never had and relief what so ever, even in pregnancy, that my adhesions
>are really bad and no matter what is done, i'm gonna be in pain for
>probably the rest of my life. So I was given 2 options. Go to pain
>management and see how they can help, and go to surgery later....or do
>surgery now and deal with pain management afterwards. I really did
>think there was going to be some trick up her sleeve for another option,
>but of course not. I guess we all hope for that one thing that works
>and doctors keep forgetting to tell us about. My hubby and I are
>fighting and he ended up flipping out on me in front of the doctor and
>walking out. Because at first I chose pain mngmt. and not surgery like
>I talked to him about numerous times. So that left me there lookin like
>a complete moron. On the way home I pretty much got told that I'm
>useless and lazy and just drug seeking and why bother goin to pain
>mngmt. to "seek more drugs to suck down". Wow, what great support. All
>because I've been to so many doctors who won't help, and don't wanna
>prescribe pain meds, and I've asked to go to pain mngmt in the past but
>I never would get help or the referral. So I guess this is how he
>truelly feels. And that I'm stupid to think pain mngmt will help since
>it's meant for "people trying to come off drugs, not for druggies like
>you to get bumped up higher and higher on stuff." I just can't believe
>it. So I got crap and yelling the whole day, while gettin blood for my
>neuro, setting up apts. for my MS tests, on the way to the
>endocrinologist, in her office and horribly on the way home. So if i'm
>not stressed or upset enough, this should help. And I don't have enough
>to cry or worry about. Now I'm alone. Not even my mother will answer
>the phone. She has no clue about my MS or the surgery. Today I gotta
>face that endoc again to talk about surgery and her methods and what
>not. He didnt understand that even though I've talked about a hyat many
>times, it's different when you're faced with it. And ya I did say pain
>mngmt cause I'm afraid of surgery, recovery, the pain, the time your
>disabled, plus bein 24 and going through such rouch hormonal changes and
>menopause. Plus I have a 2 1/2 month old son I take care of 24/7. And
>who's gonna help me after surgery? I sure won't be able to do everything
>for me and the baby while he sits in another room mad at me and sleeping
>or watching TV. I really am at my end. I think on top of all this, we
>gotta find some way to end this marriage...though we'll only be married
>2 years this summer. I dunno, I really need some help, and advice, and
>a shoulder to cry on pretty much. Since this is the only place where
>anyone seems to care lately. And we don't even know each other! Stuff
>like this really shows true colors of people in your life. It's
>disheartening when you find out that they think your useless and
>horrible for trying to get help and are scared. Anyways, sorry for
>venting so horrible like this, but I need to get it out after yesterday.
>Plus how can I possibly get through all the tests for MS, then face a
>huge surgery like this alone? Except for my son n daughter, I feel
>completely useless and alone.
>
>--
>PennyDoll27@aol.com
>Kris
>
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