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Re: Need Help.......Looks like hyst time.... :-(
From: Lynn (anonymous@obgyn.net)
Thu Mar 29 08:18:17 2007
A hysterectomy WILL NOT cure your adhesions and endo - I had a partial
hysterectomy in 1998 - left one ovary and of course facing more endo
surgery - you need to schedule a good surgery for the doc to go in and
remove as MUCH adhesions and Endo as possible - if for instance he/she
goes in and there is NO chance of saving the ovary, ect then that be
removed - I would be leary of the doc saying HYSTERECTOMY 100% without
saying lets go in laporscopically take a look - you may have to have a
laporatomy so that i can get as much ick out as possible - then even
though I hate to say it - you might then need to take a class of
medication to supress the hormones for say 6 months - Usually a repro
endocrinolgist will NOT do a hysterectomy as their field is to preserve
not remove - usually he/she will refer you to a GYN for that type of
surgery.
You have had so much going on - Severe Bleeding Issues (I belive the
doctor was suppose to do some type of cervix testing) - abdominal pain -
and now the MS issues -
I know you have Been on the forever search for a compasionate doctor -
but please be cautious at 24 years old having a complete hysterectomy
with the doc telling you it will be a cure - at some point you will have
to take HRT and that will cause some endo adhesions issues as well - if
you do not take HRT you are facing a great deal of other complications
as well (bone loss ect).
I would retalk to the doctor - have a scope done or laporotomy and get
out what needs to get taken out - then deal with the MS issues -
We spoke in email and you stated you were going to see Dr. Daiter (who
is great) i would get a second opinon from him - he did a great job with
cleaning me out....
At Thu, 29 Mar 2007, PennyDoll wrote:
>
>I dunno, went to the endocrinologist yesterday. Wasn't quite what I
>expected. Pretty much since I've done every treatment out there and
>never had and relief what so ever, even in pregnancy, that my adhesions
>are really bad and no matter what is done, i'm gonna be in pain for
>probably the rest of my life. So I was given 2 options. Go to pain
>management and see how they can help, and go to surgery later....or do
>surgery now and deal with pain management afterwards. I really did
>think there was going to be some trick up her sleeve for another option,
>but of course not. I guess we all hope for that one thing that works
>and doctors keep forgetting to tell us about. My hubby and I are
>fighting and he ended up flipping out on me in front of the doctor and
>walking out. Because at first I chose pain mngmt. and not surgery like
>I talked to him about numerous times. So that left me there lookin like
>a complete moron. On the way home I pretty much got told that I'm
>useless and lazy and just drug seeking and why bother goin to pain
>mngmt. to "seek more drugs to suck down". Wow, what great support. All
>because I've been to so many doctors who won't help, and don't wanna
>prescribe pain meds, and I've asked to go to pain mngmt in the past but
>I never would get help or the referral. So I guess this is how he
>truelly feels. And that I'm stupid to think pain mngmt will help since
>it's meant for "people trying to come off drugs, not for druggies like
>you to get bumped up higher and higher on stuff." I just can't believe
>it. So I got crap and yelling the whole day, while gettin blood for my
>neuro, setting up apts. for my MS tests, on the way to the
>endocrinologist, in her office and horribly on the way home. So if i'm
>not stressed or upset enough, this should help. And I don't have enough
>to cry or worry about. Now I'm alone. Not even my mother will answer
>the phone. She has no clue about my MS or the surgery. Today I gotta
>face that endoc again to talk about surgery and her methods and what
>not. He didnt understand that even though I've talked about a hyat many
>times, it's different when you're faced with it. And ya I did say pain
>mngmt cause I'm afraid of surgery, recovery, the pain, the time your
>disabled, plus bein 24 and going through such rouch hormonal changes and
>menopause. Plus I have a 2 1/2 month old son I take care of 24/7. And
>who's gonna help me after surgery? I sure won't be able to do everything
>for me and the baby while he sits in another room mad at me and sleeping
>or watching TV. I really am at my end. I think on top of all this, we
>gotta find some way to end this marriage...though we'll only be married
>2 years this summer. I dunno, I really need some help, and advice, and
>a shoulder to cry on pretty much. Since this is the only place where
>anyone seems to care lately. And we don't even know each other! Stuff
>like this really shows true colors of people in your life. It's
>disheartening when you find out that they think your useless and
>horrible for trying to get help and are scared. Anyways, sorry for
>venting so horrible like this, but I need to get it out after yesterday.
>Plus how can I possibly get through all the tests for MS, then face a
>huge surgery like this alone? Except for my son n daughter, I feel
>completely useless and alone.
>
>--
>PennyDoll27@aol.com
>Kris
>
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