ENDO Messages for March, 2007: Re: stage 4 endo and kidney pain?

Re: stage 4 endo and kidney pain?

From: anonymous@obgyn.net
Wed Mar 28 21:09:54 2007

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At Wed, 28 Feb 2007, Sharon wrote: >
>At Fri, 21 Dec 2001, Jill wrote:
>>
>>Yesterday I had my first laproscopic surgery, and the doctor found that
>>I have stage 4 endo. I have had terrible menstrual cycles since I was
>>young and I had a suspision that I might have it, but I am a little bit
>>nervous knowing that it is stage 4. I am 28 and the symptoms I have had
>>include varying pain throughout the month, and I also have had an
>>ovarian cyst which burst (it's the reason I had the surgery), I also
>>have kdney pain but my doctor doesn't seem to think it is related to the
>>endometriosis. Has anyone else experienced kidney pain with endo? Also
>>she wants to start me on lupron for 2 months at first. I get migranes
>>with the pill.....will I get them with lupron....does anyone know of any
>>alternatives to hormone therapy for endo?????? I'm kind of lost any info
>>would be greatly appreciated!
>>
>>Thanks...Jill
>
>I have had Endo for many years and have Kidney pain usually by day 7 of
>my cycle.
>Accupunture worked in the past at times but now it's back so on the
>search again.
>I get Migraines from the pill as well because of the progesterone in it,
>I am allergic to it.
>I have had some varying success from alternative forms of progesterone,
>like homeopathic, natural, and bioidentical. Best one was the
>homeopthic version for a while but then got headaches from that too.
>I stopped all herbs and started with a new chiropractor that does a
>release and balance technique and that has been working pretty good so
>far but now after my 4th visit I am experiencing the kidney pain but at
>present not sure if I have a virus. Newly diag with Fibro so I could be
>dealing with that.
>
>Summary - alternative forms of hormone treatment (homeopathic, herbal,
>and bioidentical).
>I got these from my Naturapathic doctor.
>
>Also I was taking these 2 herbs for the Endo cycts and I highly
>recommend them.
>Channel Lock and Unlocking formula from Health Concerns.
>
>I hope this helps you, I can emphathise with the rollercoaster ride of
>Endo,
>Sharon

I also have flank pain, it is usually at night around menstruation or ovulation and when I get up to go pee it eventually subsides. I asked a urologist about this a few years ago long before I knew I had endo and he said it could be reflux (when your urine backs up your ureters back into your kidneys). He said if you don't have frequent UTI's and if you didn't have them as a child that it was not a problem. My kidney function blood tests(BUN, creatinine) have always been normal. Also, I had a CT scan of the kidneys because I passed a kidney stone and it was normal, except for the mass on my ovary. (which is why I had a lap and now know that I have endo).

However, now that I have been dx with stage 4 endo, I told my surgeon and he ordered an MRI and an IVP (intravenous pyelogram) to check my kidneys to see if endo is blocking my ureters. Kidneys are important, so if you are having regular flank pain, your doctor should at least do some tests.

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