Re: CALLING ALL GIRLS NEED ADVIVE A.S.A.P.
From: D (anonymous@obgyn.net)
Wed Mar 28 08:08:28 2007
I agree, she needs a lap. Lupron doesn't diagnose endo, the
Endometriosis Research Center has a formal position paper strongly
against it's use as a diagnostic tool:
http://www.endometriosispaintreatment.com/endometriosis_pain_treatment/Lupron_as_a_diagnostic_technique.htm
Some striking numbers from the paper:
"In two data collection studies performed by the Endometriosis Research
Center, women were asked to share feedback about their experience with
Lupron®. The results (both data collections were limited to Lupron®
users only):
* 27.71% found Lupron® to be tolerable and helpful at symptom relief;
* 7.23% found Lupron® to be tolerable, but not helpful at symptom
relief;
* 16.87% found Lupron® to be intolerable, but nonetheless helpful at
symptom relief;
* 48.19%, almost half of the participants, indicated that Lupron® WAS
INTOLERABLE AND NOT HELPFUL AT SYMPTOM RELIEF."
and regarding the side effects of the drug:
* 21.67% did not suffer any lasting effects from Lupron®;
* 26.67% suffered lasting effects for up to 6 mos. after Lupron®;
* 10.00% suffered lasting effects for up to 1 year after Lupron®;
* 5.00% I suffered lasting effects for up to 2 years after Lupron
therapy®;
* 6.67% suffered lasting effects for up to 3 years after Lupron
therapy®;
* 6.67% suffered lasting effects for up to 4 years after Lupron
therapy®;
* 23.33%, a staggering amount of participants, suffered lasting effects
for UP TO 5 OR MORE YEARS after Lupron®.
Add to this that her body is still developing, and Lupron's negative
effects on bone density and possibly her fertility, there's no way on
earth I'd give a 14 year old that drug.
I hope you will consider finding an endo specialist who can excise the
disease. Please don't have her endo burned off - excision is the best
method available for removing the disease!
Hope this helps!
At Wed, 28 Mar 2007, Carmy wrote:
>
>hey lori,
>
>Im on this one like Loril! Go in for a Lap! I too was told I have endo
>because of my burning urine and reoccuring Uti's and also my cramping
>between my periods and when I get it. I looked up a laparoscopy and
>when i went into my Gyno he suggested it to me to so i did one. It's
>not too bad the lap, it's a pretty simple procedure. 2 weeks later and
>out and about, not in so much pain as well! Don't have any hormone
>therapy or even the pill to skip her period because it is better to have
>a diagnosis before doing anything. She's young as well your daughter so
>you don't want her to start taking these medications until she is sure!
>I hope she does get better though *hugs*
>
>At Tue, 27 Mar 2007, Loril wrote:
>>
>>Lori,
>>YES!!! YES!!! YES!!! Have her diagnosed before she is treated!!! Insist
>>on a lap... It is a simple surgery and will tell you a lot about her
>>condition.
>>If it is endo, try seeing a naturopath as well as a doctor. They have
>>so much knowledge to share that a doctor does not have! Research
>>Lupron...is the answer???? I wish your daughter the best.... I hope she
>>feels better soon.
>>Loril
>>
>>At Tue, 27 Mar 2007, Lori wrote:
>>>
>>>hi everyone, I took ashley to the doctors today and they finally agreed
>>>that she has endo, but they dont want to do a lap because they want to
>>>just treat the symtoms and that concerns me first they want to use birth
>>>contril pill consecutively for 6 months with no period then if that dont
>>>work their talking about lupron. I relly dont want to put a 14yr old on
>>>lupron till they give me a 100% diagnosis.Then there is the matter with
>>>her urine being so painful how do they know if the endo is on her
>>>bladder if they dont go in and look? I mean shes had uti's since may of
>>>2006 with no growth what does that mean? do you all think I should just
>>>let them treat her without a lap to make sure she even has endo? Please
>>>tell me
>>>what you girls think !!!
>>> THANK IN ADVANCE
>>> LORI
>>>
>>>--
>>>Hi, I am a mother of a 14yr old daughter in may of 2006 she started getting urinary tract infections which would reoccure every month at the same time but nobody told me that when they sent the culture out there was no growt. as the months went on her period would get worse and she would not be able to urinate at all only trickle she would cry with discomfort and stabbing pains. I took her to a gyn. she never even examined her she just put her on the pill. my daughter still suffers with this problem and it seem that nobody will help her. her pediatrician kept asdking me if she was sexually abused. I could not believe that they were so persistant on that question without doing any other tests to find out what was wrong now they have my daughter beliving that she is making this up somehow that she should see a shrink. I am so angry . I sit up with my daughter almost every night while she puts hot packs on her stomacvhe and cries every time she has to pee. she has missed out on school dances and making friends because shes always sick . Why wont anyone help her I feel like i am in the twilight zone of a different era.where theres no medical technology. she is going to see a urologist on wednesday but i know they will probaly send her home with some kinda meds that wont help her. please someone tell me what to do
>>>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
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