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Re: Allen-Masters syndrome, pubic symphysis and endoFrom: April (anonymous@obgyn.net)Thu Mar 15 23:51:31 2007
At Mon, 12 Apr 2004, charclark wrote: > >At Mon, 12 Apr 2004, Lisa wrote: >> >>Hi everyone! I just had my 3 week post lap visit with my gyn. I got hit >>with so much info, wondering if anyone else has experienced any of this. >>My endo was mainly in one location (thank goodness),but very deep in the >>ligaments near the bottom of the uterus, close to the vagina and >>sigmoid. Has been there for years and was the major cause of my pain. >>Dr. called it a typical Allen-Masters syndrome adhesion, something I >>never heard of before and would like to know if anyone else has/had it. >>While the pulling pain and bloating has subsided in my abdomen, I still >>have lower back and pubic pain. Turns out that during my lap, the dr. >>saw these two little bones poking into my abdomen above my bladder. He >>thinks that when my pubic symphysis bones widened for childbirth, they >>never went back into place properly, and are misaligned. I know I >>damaged my tailbone too during childbirth, and he feels my pelvic area >>is out of whack so now I need to go to another specialist (orthopedic, >>d.o. or chiropractor). Am waiting for x-ray results to come back. >>Anyone had anything like this? >> >>As far as post-op endo, my dr. is not doing any further treatment at >>this time as he burned a lot of the area around my uterus out, and the >>risks of Lupron for me (mainly decrease in bone density because of >>osteoporosis in the family)are worse than the benefits of the drug. We >>did discuss Neurontin for the remaining pelvic pain and inflammation, >>but am not familiar with this drug. Am still on Celebrex at this time >>and still have the surgical 'blues' where I could cry at any time. That >>too he said takes a few months to go away. He suggested I go back on bc >>pills if I do not want anymore children (that too is iffy because of the >>pelvic bone problem) but hate the migraines. Of course he said the endo >>can come back at any time. Anyone have any comments on what post-op >>treatments worked best for them? Lisa R. > >I was told that the anesthesia(sp) plays a signifigant role in post-op >blues. After my last lap, I tried steaming at the gym for 15 minutes >twice a week to release some of the "blues poison" from my system. I'm >really not sure if this made a huge difference, but it didn't hurt and >if felt goooooood!!! > >I've never heard of the allen-masters syndrome. My pain is also focused >in my lower back and sometimes includes my lower pelvic area. The >information I've learned from all the stories on this forum is >enlightening and amazing. I thought I was crazy and this was in my >head. Thank you all so much for proving me wrong. > >-- >charclark >
-- I was also just treated one week ago for Allen-Masters Syndrome. I am 25 and have been having extream pain in my pelvis, lower back, and abdomen. My main problem has been bowel problems, that I have been going through for 2 years. I had everything done through my gastro Dr. so their final resort was to send me to the OBGYN. They found a cyst on my right ovary and decided since my body is not respnsive to birth control to go ahead with a lyperoscopy. I had that done last Tuesday, my follow up appt. is on Monday of next week and I am praying for answers. I have researched this everywhere with no luck!! Its as if it doesn't exist!! He ended up removing a cyst off both my right and left ovary as well as treating the A.M. syndrome, somehow... My concern with this disorder, is that all of the information that I have found on it involves trauma from childbirth or abortion. I have no children nor have I ever been pregnant to my knowledge... I am just simply stumped... I am so sorry to hear about your health and your bone issues... I am hoping that you have found answers about this, seeing as how it's been 3 years since you've posted this. Thank you for listening. And, good luck to you and your health!!!
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