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Re: Can Anyone Help?
From: JJ (anonymous@obgyn.net)
Wed Mar 14 15:29:25 2007
Sue- So sorry to hear that your daughter has joined our ranks. I was
also diagnosed in my early teen years and the best advice that i can
give you is to be supportive and educate both yourself and your daughter
about all treatment options and make sure that she has a doctor that she
feels confident with and that she feels really listens to her. Also-
having gone through this while in High School...i would advise letting
her teachers in on what she is going through. I just cant tell you how
much i hated hearing..."it's just cramps, jazzercise will help." durning
gym class. If they dont know what's going on they can't do anything to
accomodate her needs. Also...i've found that planning for the worst and
hoping for the best is the best attitude to take. She may be frightened
about infertility and if she's not then she will be at some point in the
future. Just know that while this may be an issue it is not allways the
case. Only time will tell. I wish the best of luck to both you and
your daughter during this uphill battle. -JJ
At Wed, 14 Mar 2007, Abby wrote:
>
>At Wed, 14 Mar 2007, Amy wrote:
>>
>>Hi Sue! The forum is a great place to look for help and advice. I've
>>been a member since diagnosed with endo in 1995 at age 25. I think it's
>>a big blessing that she was diagnosed at a young age. Many of us on the
>>forum weren't so lucky, causing many years of frustration, confusion,
>>etc. Endometriosis effects everyone differently so it's hard to know
>>what to advise you on but again, the forum is a great place to look. I
>>have found such great info and advice on it through the years, not to
>>mention the support.
>>
>>You are always welcome to email me direct if I can help some way. I
>>hope your daughter is doing well.
>>
>>--
>>Amy Meyer
>>
>>At Sun, 11 Mar 2007, Sue wrote:
>>>
>>>My 13 year old daughter has just been diagonised with endrometriosis
>>>after 7 months of severe adominal pain. This was discovered after
>>>laproscopic surgery. Looking for any help or advice which may assist
>>>her.
>>
>Sue:
>Try to stay away from a historectomy, Endometriosis can come back
>anyway. I had a Historectomy and I believe it has come back. I had a
>ob-gyn doc. tell me it can come back anywhere in your body. It's like
>a cancer that doesn't kill, but hurts. It might be hard for her to
>conceive when she gets married. It took 2 years for me to get pregnant
>the second time. the first one was instant baby but I was 23. My
>diognosis cam at 30 years old. My mother had End. Everywhere by the
>time she was 30. If you get one opinion, get 3. She's young. I was
>ready to remove my parts, I already had two kids. If there is no other
>way, then do what they say. As long as they all say the same thing. I
>started getting serious pain at her age, they said it was PID. That PID
>turned into Endo, years later. I'll be watching the boards and hope
>this helped you. Abby
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