Re: anyone have asthma/other auto-immune system problems
From: anonymous (anonymous@obgyn.net)
Sat Mar 10 21:00:31 2007
At Sat, 10 Mar 2007, D wrote:
>
Hi-
Yes, I have the same.....I run fevers most of the time, too. Anywhere
from 99.something to 100. something. I sweat alot and with little
activity. It is very uncomfortable. I have had numerous infections,
too. They range from uti infections to sinus to mystery infections. I
had a very high wbc level at one point and the Dr was concerned with it
but not enough to find where it was coming from. He thought is could be
pelvic in nature due to endo so he gave me antibiotics. I always am
terribly fatigued to where it is hard to make it through a day at work.
I was also diagnosed with asthma last year after going to an allergist
because of terrible allergy symptoms. I have many allergies to
different things. I had the scratch allergy tests done. I also use a
inhaler.
UGH! I dont write this often about all the different ailments I
have..but, now in writing it, I realize I am just a wreck health wise..I
also have stage IV endo and interstitial cystitis ( diagnosed by
cystoscopy ). When does this end and will it ever????????? I am having
surgery next month....I hope it helps me.
I agree, this is a multi system disease. The Doctors that say to
patients " it is all in your head"..make me so VERY ANGRY!!!!! It is a
helpless feeling.
Who do we turn to then when the medical community does not even
believe????
>Hi Nic -
>
>I don't have asthma, but some of what you wrote sounded very familiar.
>
>I'm usually cold - unless I'm way too hot, like when I first come in
>from outside my body temperature doesn't seem to adjust properly. I've
>also had horrible time with sweating too much from even slight activity,
>and sometimes when I'm not even doing anything. The most likely answer
>seems to be that the sweating is at least partly a reaction to pain -
>pain can make you sweat. I think that even though I'm on pretty heavy
>opiates my body still knows that there is pain and reacts to it, even if
>I don't really feel it.
>
>I also run low grade fevers quite often. My symptoms took a turn for
>the worse in September when I changed from BCPs to the Nuvaring - I
>started bleeding and the pain got a lot worse, and the fevers started. I
>went back to BCPs after 6 weeks on the ring, but I still get fevers
>99-101 (usually 99.4-100) nearly every day. The HMO doctors have not
>had an answer except it is probably due to the inflammation, and they
>aren't really interested in figuring it out. (Like pretty much
>everything else - my experience with HMO doctors and endo has been
>dismal.)
>
>I'm also tired all the time. I'm working again now that I'm in pain
>management and the pain is controlled to the point that makes that
>possible. When I get home, I mostly just want to lay down. In general,
>the worse the pain is, the more tired I am - but even when it's been
>good I still need a lot of sleep. I usually spend most of Saturday
>"catching up" on the couch and today was no exception!
>
>You mentioned that you have frequent infections - are those confirmed
>infections? I'm wondering because I know sometimes doctors have a
>tendency to throw antibiotics at suspected infections without actually
>doing a culture to be sure something bacterial is really responsible,
>other things like inflammation can raise your WBC without actual
>infection.
>
>What's going on with your endo? I very much doubt this is "in your head"
>- fevers and raised WBCs can't just be in your head! Here's a web page
>for one of the top endo specialists who works with immune system
>problems (he calls it "multi-system disease"), Dr. Cook:
>
>http://www.pelvicpain.com/MSD.html
>" I propose use of the term Multi-System Disease to describe a family of
>clinical syndromes that share a similar underlying mechanism of action.
>These clinical syndromes would include such diseases as endometriosis,
>fibromyalgia, chronic fatigue, food and environmental sensitivities,
>some cases of interstitial cystitis, insulin resistance, hypothyroidism,
>allergies and autoimmune diseases, Lyme disease and associated
>infections to name a few. Genetic and environmental factors contribute
>to the specific clinical syndrome expressed."
>
>So there are top doctors who would also agree that the problems may be
>related.
>
>I hope this helps!
>
>At Sat, 10 Mar 2007, Nic wrote:
>>
>>Hello,
>>I never really suffered from asthma as a child, I know childhood asthma
>>is a big problem for many, but I never had symptoms until I started
>>experiencing problems with Endometriosis (at about 15 yrs old). Has
>>this been the experience of anyone else? I've developed severe asthma
>>over the past couple years, which has also co-incided with a worsening
>>of Endometriosis symptoms. I also have the following symptoms which are
>>all persistant:
>>1)I am always very cold all the time (extremeties are like ice)
>>2)but I also get low grade fevers
>>3)I am always getting infections in various parts of the body (lungs,
>>ears, pelvic area etc.) I often have a raised white blood cell count
>>when I am tested.
>>4)My allergies are a problem and often worsen my breathing(my allergies
>>also include a severe allergy to certain anti-biotics, causing
>>anaphylaxis).
>>5)I'm always tired despite getting enough sleep.
>>I was also on prednisone for nearly a year (last year) and still take it
>>when my breathing becomes really bad. I was also on 15-16+ rounds of
>>anti-biotics over the past 18 months for infections. I'm always feeling
>>sick and many doctors have just told me that I'm stressed out/depressed
>>(like "it's in your head") I tend to think that they are wrong (since I
>>was told the same thing before the Endo was diagnosed). I think that
>>there could be something more to this than just a head case. Anyone
>>else have similar symptoms? What could be causing all this?
>>Thanks for your help,
>>Nic
>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)