ENDO Messages for March, 2007: Re: Advice for Melissa

Re: Advice for Melissa

From: Cari (anonymous@obgyn.net)
Wed Mar 7 15:01:47 2007

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Reply: Michelle: "Re: Advice for Melissa"

Melissa...

Exact same story as mine...felt as if I was the crazy one after seeing so many docs and so many ultra sounds...then finally...vindication!! I was written up at work for the first time in my life for missing days when my own boss knew my diagnosis and even sent flowers after surgery! I don't know what your situation is at work, but if you can FILE FOR FMLA (Family Medical Leave Act)...it allows you to take time off for your own illness...I work in Human Resources so I know a bit about this. I filed for it immediately after she wrote me up to protect myself. I am able to take up to three days per month to be in pain (this part is at your doc's descretion since he/she has to sign the forms).

I thought the diagnosis would make it easier, but truth be told it has only been worse. My doc pushed Lupron too, he was very honest in saying however that taking those shots is, and I quote, "a bad ride." Some women have NO trouble at all. My concern was that it was an injection and if I react badly, I am stuck with it. He offered to have me go the Synarel route instead, which does the same thing but is a daily nasal spray. I gave it almost four months and cried the whole way through. It was not a good time, he was correct. The thing is, so many have said the pain comes back after treatment and that is correct. Excision is the best thing that you can have done. The endo that my doc did remove during surgery has left those areas totally pain free while the pelvic wall and my lower spine ache constantly.

Hope I helped in some small way...

I know, beleive me, I know how you feel...

At Tue, 6 Mar 2007, Melissa wrote: >
>I have fought with pelvic pain, irregular/heavy menstruals, low back
>pain, fatigue and many other symptoms since I was 15 years old. It has
>only gotten worse. I am now 26 years old...no children...and was
>diagnosed with Endometriosis in September with a diagnostic laproscopic
>surgery. I had doctor after doctor tell me there was NOTHING wrong with
>me. I'm thinking am I crazy and imagnining the PAIN AND MISERY. They
>did diagnose me with PCOS; however the cysts on my ovaries were always
>too small to surgically remove. I always wondered then why am I in sooo
>much pain and barely getting out of bed. Well it seems to only have
>gotten worse. My work is suffering and my boss is riding me. I have
>missed alot of work due to the pain and fatigue. Muy doctor wants me to
>try LUPRON DEPOT. Any suggestions on that? It is very expensive even
>after my insurance pays their part. Should I pay 200 dollars a month
>for the shot and risk it not working??
>
>ADVICE PLEASE...
>
>--
>MELISSA
>

Next message: Cari: "Oh my aching back..."
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In reply to: Melissa: "Advice needed"
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