Re: ? about Medicaid / Endo Surgeons: PLEASE HELP
From: D (anonymous@obgyn.net)
Fri Mar 2 16:42:44 2007
This is a tough situation, to be sure. You should definitely look into
pain management. It may take a while to find a doctor, so it would be a
good idea to have a pain doctor working with you. It's made a huge
difference for me.
Endo specialists are few and far between, and as far as I know the
handful of top endo docs aren't in any insurance networks, and none take
medicare nor medicaid.
What might work for you is to try a teaching hospital. You may be able
to find a good doctor who can perform excision at a teaching hospital
that takes medicaid. Whatever doctors you see, you should talk with
them and make sure they have a lot of experience excising endo. Here's
a page about talking to doctors:
http://www.endometriosissurgeon.com/TreatingEndometriosis/TalkingWithYourDoctor/default.aspx
Honestly though, even with HMO insurance I haven't been able to find a
doctor in network with good endo skills - there just aren't very many of
them out there. It looks like I'm going to be borrowing the money for a
specialist from family, and I feel extremely fortunate that's available
to me.
The insurance/healthcare situation in this country stinks for a lot of
us! I'm sorry you are having such a hard time, and hope something works
out soon.
At Fri, 2 Mar 2007, Elisa wrote:
>
>Hi Nic~
>
>Sorry you are struggling with this part of your disability.
>Unfortunatley, it's hard sometimes to find Dr.s who are taking medicare
>let alone medicaid. When I had it before my disability was approved the
>only care I could really get was at the county hospitals and it was
>poor.
>
>I just held off until a few years later when I got married and we use my
>husbands insurance only which luckily happens to be a good one. The
>other option may be to look into a state funded insurance plan (however
>the premiums may vary from state to state) This may give you some PPO
>type of coverage that will allow you to travel or see whomever you need.
>
>I know it's hard. I will be thinking and praying for some answers for
>you.
>
>--
>Elisa
>
>At Thu, 1 Mar 2007, Nicole wrote:
>>
>>Hello all...
>>I've been driving myself crazy trying to find a doctor that will take my
>>medicaid. I'm in NYC and I looked both on the EA's list of doctors as
>>well as the Forum on Yahoo. I also looked at the Endovictims list. I've
>>called most all of the doctor's to see if they take Medicaid...and none
>>that I've called do. Does anyone else have medicaid that has found a
>>good surgeon that takes it? I've had 2 surgeries already, they were done
>>by doctors that were NOT Endo specialists and so after the surgeries my
>>pain came back immediately and even WORSE than it was before (which
>>everyone kept telling me was impossible...yeah right!). I really want
>>to have an Endo experienced doctor so I don't have this happen again. I
>>feel like both surgeries were a total waste, but at the time I felt like
>>I had no choice (I was in the ER and they told me I HAD TO have them)
>>The only thing I know is that Endometriosis was diagnosed in the biopsy.
>>Also does anyone know if medicaid will let you travel out of state, if,
>>for example there is no one in my state that will take my insurance.
>>(for goodness sakes there must be SOMEBODY that does). I'm in so much
>>pain ALL THE TIME, and I've tried hormones and don't want to do that
>>anymore, besides they never really worked for me. I really think I need
>>a surgery by someone who knows what they are doing. I just want to be
>>my normal self again! Any comments would be helpful.
>>Thanks so much. -Nic
>
--
Find an endo specialist in the ERC's EndoDocs group:
http://groups.yahoo.com/group/EndoDocs/
Try an excellent endo support group:
http://groups.yahoo.com/group/erc/
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